DementiaRoadmap Wales

Promoting living well with dementia across Wales

Worried about your memory

For anyone concerned about their own, or someone else's memory, it is important to visit their GP or to seek help from relevant local organisations e.g. Alzheimer’s society, Wellbeing Centre.

GPs and primary health care teams are often the first port of call for people worried about their memory, and are a gateway to timely diagnosis and interventions. Dementia is progressive so it is important to obtain a diagnosis and understand about the support and treatments that are available to stabilise / improve symptoms that start affecting day to day life. The GP will carry out an initial assessment and may refer to a consultant for further specialist assessment either in primary care or a memory clinic.

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  • Dementia: Reduce your risk in 6 stepsApril 23 2018This document outlines 6 steps that people can take to improve both physical and mental health and significantly reduce the risk of developing dementia.
  • Helping you to assess cognition: A practical toolkit for cliniciansMarch 12 2013This toolkit published by the Alzheimer's Society provides guidance to clinicians about what cognitive function tests are available and how they may be used in clinical practice.
  • Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Accessible Information StandardJuly 28 2015The Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
  • World Alzheimer Report 2015: The Global Impact of DementiaAugust 25 2015The World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.
  • The Daily SparkleFebruary 5 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Prevalence of dementia in population groups by protected characteristics: a systematic review of the literatureOctober 2 2015This literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion.
  • Dementia stakeholder groups – action plansJune 29 2011These plans outline actions for improvement across four key priority areas: improving service provision, early diagnosis, access to information and training.
  • Fulfilled Lives, Supportive Communities: A Strategy for Social Services in Wales over the next decadeFebruary 21 2007This strategy describes how modern accessible and responsive social services, delivered flexibly, consistently and sustainably across organisational boundaries will contribute to a better Wales and to improving the lives of its citizens.
  • National Dementia Vision for WalesSeptember 25 2011The National Dementia Vision for Wales sets the Welsh governmnet's vision to strengthen communities, creating a key resource for people affected by dementia at local and national level. The objective being that over time, building on local improvements from the grass roots up, a network of local dementia supportive communities will create a national dementia supportive community.
  • Dementia rarely travels alone: living with dementia and other conditionsApril 20 2016This report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.
  • Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetOctober 22 2015This guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.
  • Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaOctober 7 2015This report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.
  • Cataracts and dementia factsheetJune 25 2013The information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.
  • Support and care for people living with dementia from minority communitiesFebruary 24 2013This report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
  • Eye examinations for people with dementia factsheetNovember 10 2014This factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.
  • Wearing glasses with dementia factsheetThis factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
  • Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportApril 29 2015This guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.
  • Living with young onset dementiaJune 10 2015This video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
  • Windows of opportunity for prevention and early intervention in dementia toolkitMarch 24 2011This online resource, produced by the Social Care Institute for Excellence, will help commissioners and providers to ensure that any help or support offered at any stage in a person’s journey with dementia is offered in a timely way.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • New models of care for dementiaApril 9 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
  • Dementia awareness resource packApril 10 2011This pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Prepared to care – Challenging the dementia skills gapJune 4 2009This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
  • Always a last resort: Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homesApril 4 2008This report published by the All-Party Parliamentary Group on Dementia (APPG) examines the problem of the over prescription of antipsychotic drugs to people with dementia living in care homes and proposes workables solutions.
  • NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
  • How common is dementia?April 6 2014According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
  • Drugs used to relieve behavioural and psychological symptoms in dementiaJanuary 20 2012This factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
  • Frontotemporal dementiaAugust 6 2013This article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
  • Are you worried about Dementia?April 7 2014This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaJuly 4 2012This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • Services for younger people with Alzheimer’s disease and other dementiasMarch 18 2006This briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
  • The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015The Sound Doctor is a website full of films developed to help individuals, their relatives and carers to better understand the condition so that they can all take control and get the most out of life.
  • Care of people with dementia in primary careMarch 10 2012This factsheet published by the Royal College of General Practitioners provides GPs with guidance on the care of people with dementia in primary care.
  • Blackfriars Consensus on promoting brain healthMay 3 2014The Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
  • Dementia Prevalence CalculatorApril 30 2013The Dementia Prevalence Calculator presents an opportunity for all health communities to gain a better understanding of their local estimated prevalence of dementia in the community, and among people living in local care homes.
  • Better care for older peopleJuly 11 2014This online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
  • Guidance on the use of neuro-imaging in the assessment of dementia in Primary CareSeptember 12 2013This guidance for Clinical Commissioning Groups and Health and Wellbeing Boards covers the role of neuro-imaging in the assessment and diagnosis of dementia in primary care.
  • CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
  • Younger people with dementiaMay 19 2015This factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
  • Be head strongMarch 16 2014This guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.
  • Can dementia be prevented?February 16 2014These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.
  • A Misspent Opportunity? Inquiry into the funding of the National Dementia StrategyMarch 18 2010This report published by the All-Party Parliamentary Group on Dementia (APPG) examines initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England.
  • World Alzheimer Report 2014, Dementia and Risk ReductionSeptember 16 2014The World Alzheimer Report 2014, Dementia and Risk Reduction: An analysis of protective and modifiable factors critically examines the evidence for the existence of modifiable risk factors for dementia.
  • Dementia UKFebruary 3 2007This report into the prevalence and cost of dementia shows that as the UK's population ages the number of people with dementia will grow substantially. It also shows that dementia costs the UK £17 billion a year.
  • Am I at risk of developing dementia?January 16 2014This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.
  • Dementia Revealed: What primary care needs to knowOctober 30 2014This toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.
  • Enhanced service for people with dementia in primary careSeptember 30 2013This short paper by Alistair Burns and Laurence Buckman summarises a multi-disciplinary group discussion on how the Enhanced Service might be optimally used to increase the numbers of people receiving a diagnosis and accessing post diagnostic support.
  • A practical guide to healthy ageingOctober 1 2015This guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
  • Dementia and comorbidities: Ensuring parity of careApril 14 2016This report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.
  • Dementia ConnectApril 26 2018Dementia Connect is Alzheimer's Society's comprehensive services directory for people affected by dementia in England, Wales and Northern Ireland.
  • Dewis CymruApril 27 2018Dewis Cymru is a website that provides information and advice about well-being. In addition to health information, Dewis Cymru provides information about people and services in your area that can help you with the things that matter to you.
  • Training resources to improve the dementia component of the NHS Health CheckFebruary 12 2018These training resources can be used by NHS Health Check trainers and practitioners to improve the quality of their delivery of the dementia component of the check.
  • Delirium awareness videoMarch 4 2018Delirium in older adults often goes unrecognised by health care professionals and can be poorly managed. This video was produced with the aim of improving recognition and management of delirium in any healthcare setting.
  • A Guide to Respite for People Affected by DementiaNovember 26 2018This guide gives carers and people living with dementia the information they need when considering respite, to help them to explore respite alternatives, and sets out their rights.
  • Dementia Friends – bookcase analogyOctober 16 2018In this film Natalie Rodriguez, Dementia Friends Champion, uses a bookcase analogy to describe how dementia may affect a person. This simple explanation, orginally devised by Dr Gemma Jones, can be helpful for Dementia Friends Champions to explain dementia to others.
  • Home Safety House Check by South Wales Fire and Rescue ServiceApril 18 2019South Wales Fire and Rescue offer you the opportunity to have a FREE Safe and Well visit in your home. This will be carried out by firefighters from your local Fire Station and their Home Safety Team. The visit takes about 30 minutes and they will provide and install free smoke alarms, heat detectors and carbon monoxide alarms where risk is identified. Alarms for people who are Deaf or hard of hearing are also available.
  • UnforgettableApril 4 2019Unforgettable.org is a website offering advice and community as well as products to help improve the lives of people with dementia. It provides some interesting blogs of people's experiences with dementia including real stories and diaries.
  • Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
  • Useful Apps for Dementia Patients & CarersApril 25 2019There are many apps available that can be downloaded to a smartphone or tablet  that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
  • Gwent Access to AdvocacyAugust 30 2019Gwent Access to Advocacy GATA provides a single point of access for advocacy services in Gwent covering Blaenau Gwent, Caerphilly, Monmouthshire and Torfaen. (For Newport contact Dewis Centre for Independent Living (CIL))
  • Living with early-stage dementiaNovember 20 2019Living with early-stage dementia is a comprehensive guide published by Age UK, also known as Age Cymru in Wales.
  • Dementia Action Plan for Wales 2018 – 2022The Welsh government have adopted the Dementia Action Plan for Wales 2018 - 2022, with Vaughan Gething, Cabinet Secretary for Health and Social Services, stating that,  "Our vision is for Wales to be a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities."
  • The Many Faces of DementiaSeptember 9 2019This online course enables you to gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses of dementia, the people involved and the implications of these for our wider understanding.
  • Risk reduction of cognitive decline and dementiaMay 14 2019The World Health Organization (WHO) guidelines on risk reduction of cognitive decline and dementia provide evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.
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