DementiaRoadmap Wales

Promoting living well with dementia across Wales

Post diagnosis support

When someone is diagnosed with dementia, they should be encouraged to remain as independent as possible, and to continue to enjoy their usual activities and occupations.

It is important to encourage the person with dementia to make arrangements for the future including future care options. They may wish to prepare for a time when another person may need to help with their affairs.

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Resources

  • Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Accessible Information StandardJuly 28 2015The Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
  • The Daily SparkleFebruary 5 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Dementia stakeholder groups – action plansJune 29 2011These plans outline actions for improvement across four key priority areas: improving service provision, early diagnosis, access to information and training.
  • Active Minds – dementia activity resourcesFebruary 5 2016Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
  • Prevalence of dementia in population groups by protected characteristics: a systematic review of the literatureOctober 2 2015This literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion.
  • Fulfilled Lives, Supportive Communities: A Strategy for Social Services in Wales over the next decadeFebruary 21 2007This strategy describes how modern accessible and responsive social services, delivered flexibly, consistently and sustainably across organisational boundaries will contribute to a better Wales and to improving the lives of its citizens.
  • National Dementia Vision for WalesSeptember 25 2011The National Dementia Vision for Wales sets the Welsh governmnet's vision to strengthen communities, creating a key resource for people affected by dementia at local and national level. The objective being that over time, building on local improvements from the grass roots up, a network of local dementia supportive communities will create a national dementia supportive community.
  • Dementia rarely travels alone: living with dementia and other conditionsApril 20 2016This report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.
  • On the journey to becoming a dementia friendly organisationSeptember 3 2015This paper shares the lessons that have been learned through the Joseph Rowntree Foundation’s Dementia without Walls programme which started in June 2012 with a vision of making the UK a better place for people with dementia.
  • Cataracts and dementia factsheetJune 25 2013The information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.
  • Eye examinations for people with dementia factsheetNovember 10 2014This factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.
  • Support and care for people living with dementia from minority communitiesFebruary 24 2013This report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
  • Grief, loss and bereavementFebruary 22 2016This factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.
  • Creating a dementia friendly workplace: A practical guide for employersApril 22 2015This guide published by the Alzheimer's Society is designed to help employers provide support for staff members with dementia. It may also be a useful resource for people living with, or affested by, dementia in the workplace.
  • Spirituality and ageing: implications for the care and support of older peopleJanuary 22 2013This briefing paper published the Institute for Research and Innovation in Social Services explores why our ageing population requires person-centred care and developmental support in order to maximise its chances of ageing well.
  • Wearing glasses with dementia factsheetNovember 10 2014This factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
  • Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
  • Peer Support for People with Dementia: A social return on investment studyThis report published by the Health Innovation Network South London, the Academic Health Science Network for South London, outlines the findings of a study which demonstrated that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment.
  • Evaluation of the Bradford Dementia Friendly Communities ProgrammeThis report published by the Joseph Rowntree Foundation identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like.
  • Evaluation of the York Dementia Friendly Communities ProgrammeSeptember 3 2015This report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.
  • How can we make our cities dementia friendly?This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York.
  • Developing a national user movement of people with dementiaThis report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them.
  • Duty of Candour: Information for all providersMarch 15 2015This document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
  • Dementia 2013: The hidden voice of lonelinessApril 9 2013This report, published Alzheimer’s Society, reveals that nearly two thirds (62%) of more than 250,000 people with dementia who live on their own are lonely. This compares to just 24 per cent of over 55 year olds.
  • Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportApril 29 2015This guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • New models of care for dementiaApril 9 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
  • Dementia Peer Support Resource PackApril 24 2015This resource pack, published by the Health Innovation Network, the Academic Health Science Network for South London, aims to promote and encourage more peer support opportunities for people with dementia.
  • What is dementia?April 2 2014This resource will help practitioners to understand that dementia is more than just difficulties with memory. Dementia is not a single disease but a term used to describe a group of symptoms.
  • Building on the National Dementia Strategy: Change, progress and prioritiesJuly 27 2014This report published by the All Party Parliamentary Party Group on Dementia (APPG) calls for a new long term strategy for dementia to be a worthy successor to the National Dementia Strategy for Dementia in England and the Prime Minister's challenge on dementia.
  • The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Prepared to care – Challenging the dementia skills gapJune 4 2009This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
  • Always a last resort: Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homesApril 4 2008This report published by the All-Party Parliamentary Group on Dementia (APPG) examines the problem of the over prescription of antipsychotic drugs to people with dementia living in care homes and proposes workables solutions.
  • Dementia does not discriminate – The experiences of black, Asian and minority ethnic communitiesJuly 2 2013This report, produced by the All Party Parliamentary Group (APPG) on Dementia, looks at the experiences of black, Asian and minority ethnic (BAME) communities in dealing with the condition.
  • Dementia FriendsFebruary 21 2013Dementia Friends is an Alzheimer’s Society initiative that aims to give a million people a better understanding of dementia by 2015.
  • NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
  • Cardiovascular Disease Outcomes StrategyMarch 29 2013This outcomes strategy published by the Department of Health identifies ten key actions for local authority and NHS commissioners and providers to deliver improvements in patient outcomes.
  • Award in Understanding DementiaMarch 18 2015The Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
  • Drugs used to relieve behavioural and psychological symptoms in dementiaJanuary 20 2012This factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
  • Dementia: A state of the nation report on dementia care and support in EnglandNovember 29 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
  • Reading well books on prescription for dementiaFebruary 4 2015The Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
  • National Diabetes AuditSeptember 29 2014The National Diabetes Audit (NDA) is a major national clinical audit, which measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards, in England and Wales.
  • The dementia guideFebruary 22 2014This guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
  • Five Year Forward ViewOctober 23 2014The Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaJuly 4 2012This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • Optimising treatment and care for behavioural and psychological symptoms of dementiaJuly 28 2011This best practice guide has been developed in consultation with an advisory group of leading clinicians specialising in dementia.
  • The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015The Sound Doctor is a website full of films developed to help individuals, their relatives and carers to better understand the condition so that they can all take control and get the most out of life.
  • Blackfriars Consensus on promoting brain healthMay 3 2014The Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
  • The Right Prescription: resource packSeptember 3 2012This resource pack will support pharmacists, who play a crucial role in medicines optimisation, to have critical conversations about the prescription of antipsychotics in dementia and reduce inappropriate prescribing.
  • Cancer information factsheetsJune 17 2014These factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.
  • Dementia Friendly Communities: New domains and global examplesMarch 20 2015This report, published by Alzheimer’s Disease International, highlights the emerging trend to create dementia-friendly communities as a global response against stigma in an effort to form more inclusive societies for people living with dementia.
  • Better care for older peopleJuly 11 2014This online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
  • CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
  • Best practice for commissioning diabetes servicesMarch 14 2013This guidance published by Diabetes UK aims to help commissioners understand the nature of integrated diabetes care, why it is so important and to provide a signpost to other documents that will be of help in the commissioning process.
  • Dementia adviser service: evaluationAugust 31 2013This report published by the Alzheimer's Society presents the findings of an evaluation of the Pathfinder Dementia Adviser services from the perspective of service users.
  • Recognised, valued and supported: Next steps for the Carers StrategyDecember 3 2010This strategy identifies the actions that the Government will take between 2011-15 to support its priorities to ensure the best possible outcomes for carers and those they support.
  • A Misspent Opportunity? Inquiry into the funding of the National Dementia StrategyMarch 18 2010This report published by the All-Party Parliamentary Group on Dementia (APPG) examines initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England.
  • Ten tips for communicating with a person with dementiaSeptember 8 2012These top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.
  • Putting dementia on the mapNovember 29 2013Putting dementia on the map published by the Department of Health draws on data and information about dementia health and care, dementia friendly communities and research.
  • Reducing the use of antipsychotic drugsJuly 21 2011This leaflet is for people with dementia and their carers who want to know more about behavioural and psychological symptoms of dementia and how they can be prevented and treated.
  • What about me? Remembering the needs of carersJuly 29 2010This short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.
  • Diabetes Risk ScoreSeptember 29 2013The Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.
  • NHS Continuing Healthcare e-learning toolMay 8 2013This e-learning tool developed by NHS England and the Association of Directors of Adult Social Services will support all practitioners to improve assessment and decision making around NHS Continuing Healthcare.
  • Improving the delivery of adult diabetes care through integrationOctober 10 2014This report published by Diabetes UK explains how diabetes care can be improved to achieve better outcomes for people with diabetes. The challenge for commissioners and healthcare providers locally is to make the system work to support that.
  • Collaborative Care and Support Planning: an introductionJanuary 19 2015This animation, commissioned by the Royal College of General Practitioners, sets out the collaborative care and support planning process in a short, easy to understand way.
  • Building dementia-friendly communities: A priority for everyoneSeptember 3 2013This report, published by the Alzheimer's Society, explores evidence from people with dementia about their experiences of living in their community and the ten key things they would like to see in a dementia-friendly community.
  • Guidance for Learning Disability Partnership BoardsJune 18 2013This booklet offers guidance to Learning Disability Partnership Boards to help them ensure that carers of people with learning disabilities, and carers with learning disabilities are supported and involved in local service developments which affect their lives, and the lives of the people they care for.
  • Dementia Revealed: What primary care needs to knowOctober 30 2014This toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.
  • State of Care 2013/14October 16 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
  • Committed to carers: Supporting carers of people at the end of lifeJuly 30 2011This report published by the Marie Curie Cancer Care draws on the direct experiences of people caring for someone at the end of life and on Marie Curie Cancer Care’s years of expertise of caring for carers.
  • Supporting Family Carers of People with Learning DisabilitiesSeptember 18 2009This resource pack produced by the Foundation for People with Learning Disabilities and the Sharing Caring Project at Sheffield Mencap supports practitioners to develop and provide the best information and support to family carers of people with learning disabilities.
  • Improving the quality of cancer care in primary careJune 17 2014This toolkit developed by Macmillan Cancer Support aims to support the primary care professionals to develop initiatives and programmes which have a positive impact on the care of people daiagnosed with cancer, their families and carers.
  • Initial review following diagnosisMay 7 2014This guidance outlines the steps that a practitioner should consider during an initial review with a patient that has received a formal diagnosis of dementia.
  • Implementing local diabetes networksJanuary 14 2013Implementing Local Diabetes Networks, published by Diabetes UK, is for commissioners to explain the importance and composition of a local diabetes network.
  • A proposal for a UK dementia eye care pathwayJune 11 2015This article published in the journal Optometry in Practice introduces a proposal for a UK dementia eye care pathway and outlines the areas that should be covered within a pathway.
  • 10 Top Tips for supporting carers of people living with cancerDecember 12 2014This guidance produced by Macmillan Cancer Support offers some top tips for primary care practitoners to support carers of people living with cancer.
  • Cancer Delivery Support ToolJune 17 2014The Cancer Delivery Support Tool developed by Macmillan Cancer Support is an electronic support tool to assist GPs and Health Professionals to make an early diagnosis of five types of cancer: Oesophageal, Pancreatic, Ovarian, Colorectal and Lung.
  • ICD deactivation at the end of life: Principles and practiceSeptember 30 2013Designed for any health professionals involved in caring for patients with an Implantable Cardioverter Defibrillator (ICD), this document discusses issues relating to ICDs in the management of advanced heart disease.
  • Diabetes care planning reviewMarch 12 2014Practitioners should provide an annual care planning review to all people with diabetes to ensure that each patient gets the right support for managing their diabetes. This short film produced by Diabetes UK aims to help patients to understand what care planning is, and how they can get more involved in their diabetes care.
  • Peer support networks and dementia advisers: evaluationOctober 9 2013This report, published by the Department of Health, provides the findings of the Healthbridge evaluation into the role that dementia advisers and peer support networks can provide in post diagnostic support for people with dementia and their carers.
  • Improving cancer patient experience: A top tips guideJune 17 2014This guide published by Macmillan Cancer Support provides top tips to support professionals make service improvements in response to the National Cancer Survey and deliver improved patient experience.
  • Echocardiography guidelines for valve quantificationApril 1 2011This poster contains guidelines for echocardiography valve quantification developed by the Education Committee of the British Society of Echocardiography.
  • Diabetes care pathwayOctober 14 2013This NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.
  • Befriending works: building resilience in local communitiesNovember 12 2010This report published by the Mentoring and Befriending Foundation provides an overview of how befriending can contribute to improving the health and well-being outcomes of vulnerable people at risk of social isolation or exclusion from mainstream society.
  • Dementia: ethical issuesJanuary 25 2010This report published by the Nuffield Council on Bioethics presents an ethical framework to help practitioners who face dilemmas in connection with the everyday care of someone with dementia.
  • Thinking Ahead: a planning guide for familiesOctober 18 2013This guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.
  • Taking medication ‘just like that’October 13 2012This campaign led by the British Heart Foundation (BHF) aimed to remind people how vital heart medicines and raise awareness that millions of people could be putting their lives in danger by not taking their medicines as prescribed.
  • Duty to Care? Supporting and involving unpaid carers of people at the end of lifeJune 1 2014This resource covers the three plenary discussion sessions at the ‘Duty to Care?' conference held in 2013 facilitated by the National Council for Palliative Care. Three detailed scenarios were debated to help identify and explore the practical issues involved in being or supporting a carer.
  • Diabetes and your heartMarch 11 2010This booklet is for people who have diabetes, and for their families and friends. It may also be useful if you don’t have diabetes but you have been told you may develop it in the future.
  • Continence Product AdvisorJune 25 2014The Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.
  • Caring, compassionate, skilled – transforming the dementia workforceOctober 5 2011This guidance will support commissioners to better understand workforce planning and development issues that may impact staff working with people with dementia and their carers and families.
  • Life After Death: Six steps to improve support in bereavementJanuary 30 2014This briefing paper published by the National Council for Palliative Care identifies six steps to address bereavement as a major public policy issue.
  • Good to go: A guide to dementia-friendly days outApril 28 2015This handbook published by Care UK aims to support carers relatives and friends who want to enjoy a variety of outings and trips with someone living with dementia.
  • Carers services guide – Setting up support services for carersOctober 28 2013This guide published by Help the Hospices provides a framework for organisations planning to set up support services for carers of people with life-limiting and terminal illnesses.
  • Diabetes in adults quality standardMarch 14 2011This NICE quality standard defines clinical best practice for diabetes care. It provides specific, concise quality statements, measures and audience descriptors to provide patients and the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.
  • Template action plan to improve care for people with dementia in the communityJuly 28 2011This is a template action plan for use by local authorities and commissioning consortia working together under the auspices of Health and Well-being Boards to improve care for those people with dementia who live in their own homes or in some other residential setting.
  • Dementia patient decision aidSeptember 7 2009This decision aid is intended to assist health professionals considering prescribing acetylcholinesterase inhibitor medication (donepezil, galantamine or rivastigmine) for patients to improve symptoms of dementia and reduce the rate of decline in mental function.
  • An evaluation of dementia support worker rolesNovember 25 2011This report presents an evaluation of existing models of community-based support for people with dementia, their families and carers.
  • Dementia and comorbidities: Ensuring parity of careApril 14 2016This report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.
  • National dementia and antipsychotic prescribing auditJuly 28 2012The National dementia and antipsychotic prescribing audit aims to gather information from primary care to establish a national picture of prescribing antipsychotic medication in people with dementia.
  • Diabetes sample service specificationAugust 14 2014The service specification, published by NHS England, outlines the provision of high quality care for all those with diabetes. It describes all the services needed to provide a complete care pathway for people with diabetes.
  • Turning up the volume: unheard voices of people with dementiaJanuary 23 2018This report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia. It provides an insight into the gap between the things that people living with dementia need to live well and their day-to-day reality.
  • Dementia ConnectApril 26 2018Dementia Connect is Alzheimer's Society's comprehensive services directory for people affected by dementia in England, Wales and Northern Ireland.
  • Dewis CymruApril 27 2018Dewis Cymru is a website that provides information and advice about well-being. In addition to health information, Dewis Cymru provides information about people and services in your area that can help you with the things that matter to you.
  • How living with dementia could beJanuary 18 2017This short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
  • A Guide to Respite for People Affected by DementiaNovember 26 2018This guide gives carers and people living with dementia the information they need when considering respite, to help them to explore respite alternatives, and sets out their rights.
  • Disabled Bus PassFebruary 28 2019If you are no longer able to drive on medical grounds, you can apply for a free bus pass from the local council to get around.
  • Direct PaymentsMarch 7 2019If you have had an assessment that shows you are eligible for social care services, you may prefer to organise your services yourself rather than have the Council do this for you. This is called ‘Direct Payments’. 
  • Dementia Friends – bookcase analogyOctober 16 2018In this film Natalie Rodriguez, Dementia Friends Champion, uses a bookcase analogy to describe how dementia may affect a person. This simple explanation, orginally devised by Dr Gemma Jones, can be helpful for Dementia Friends Champions to explain dementia to others.
  • The Royal British Legion – Admiral Nurse ServiceApril 24 2019The Royal British Legion Admiral Nurses offers specialist support, information and advice to the carers of people with dementia. It is available to anyone who has served in the British Armed Forces their family and carers.
  • Lasting Power of AttorneyMarch 28 2019After a diagnosis of Dementia, it is worth forward planning including setting up Lasting Power of Attorney for both health and financial affairs. 
  • Social Services Support for DementiaEven if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
  • Preparing for a Social Services Care Needs AssessmentTips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below.  http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment  
  • Home Safety House Check by South Wales Fire and Rescue ServiceApril 18 2019South Wales Fire and Rescue offer you the opportunity to have a FREE Safe and Well visit in your home. This will be carried out by firefighters from your local Fire Station and their Home Safety Team. The visit takes about 30 minutes and they will provide and install free smoke alarms, heat detectors and carbon monoxide alarms where risk is identified. Alarms for people who are Deaf or hard of hearing are also available.
  • CEA Cinema CardMarch 7 2019The CEA Card is a national card scheme developed for UK cinemas by the UK Cinema Association (UKCA). The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.  
  • Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
  • UnforgettableApril 4 2019Unforgettable.org is a website offering advice and community as well as products to help improve the lives of people with dementia. It provides some interesting blogs of people's experiences with dementia including real stories and diaries.
  • NHS Continuing Healthcare and NHS-funded Nursing CareMarch 28 2019NHS Continuing Healthcare  If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
  • Benefits for people affected by dementiaApril 11 2019The Alzheimer's Society website provides information about a number of benefits that may be available to you. This includes details on what and how you can claim.
  • Disabled Person’s RailcardMarch 28 2019The Disabled Persons Railcard is for people with a disability that makes travelling by train difficult. It entitles you to qualify for 1/3 off rail fares for you and a companion travelling with you.
  • Eye Tests at HomeApril 4 2019Eye care is important for people with dementia and may be provided at home or in a care home. Eye examinations are free for over 60's and for some younger people with dementia, as are home visits if it is difficult to get to a practice. Benefits may be available to help towards the cost of glasses. 
  • Advance Care PlanningMarch 28 2019If you were to lose the capacity to make decisions about your life today, what are the important things you would like those caring for you to know about you and what you would want to happen? One way of making people aware of your wishes is by a process that is called advance care planning.
  • Useful Apps for Dementia Patients & CarersApril 25 2019There are many apps available that can be downloaded to a smartphone or tablet  that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
  • Memory BagsSeptember 25 2019Memory bags are FREE to borrow from Torfaen libraries and are loaned for 3 weeks. There are ten themes to choose from. Memory bags contain a variety of items to be shared and enjoyed. For instance, listen to music or watch a film together; look ...
  • Gwent Access to AdvocacyAugust 30 2019Gwent Access to Advocacy GATA provides a single point of access for advocacy services in Gwent covering Blaenau Gwent, Caerphilly, Monmouthshire and Torfaen. (For Newport contact Dewis Centre for Independent Living (CIL))
  • Library Carers Card & Library at Home ServiceSeptember 25 2019If you are a carer for someone who loves to read but is unable to visit the library due to ill health or disability, you can apply for a carers card to enable you to borrow a total of 50 items for yourself and the ...
  • Priority Services RegisterOctober 11 2019Did you know that every gas, water and electricity supplier – the companies you pay your bills to, and your electricity distribution network, has what’s called a Priority Services Register (PSR)? The Priority Services Register (PSR) is a free service offered throughout the energy industry available to domestic customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs.
  • Independent Living Equipment in GwentNovember 1 2019Cefndy-Medequip work with local authorities and the NHS to provide the community equipment service in Gwent. They specialise in aids and equipment for the home, mobility, bathrooms, bedrooms, kitchen and dining, living room and outdoors. Their catalogue has a section called "Dementia Friendly Collection".
  • Caring for someone with dementiaNovember 20 2019Caring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
  • Mouth care for people living with dementiaMouth care for people living with dementia is a leaflet published by Aneurin Bevan Community Dental Service to provide information for carers. Information includes: mouth care, diet, brushing teeth and gums, denture care, and visiting the dentist.
  • Living with early-stage dementiaLiving with early-stage dementia is a comprehensive guide published by Age UK, also known as Age Cymru in Wales.
  • Dementia Action Plan for Wales 2018 – 2022The Welsh government have adopted the Dementia Action Plan for Wales 2018 - 2022, with Vaughan Gething, Cabinet Secretary for Health and Social Services, stating that,  "Our vision is for Wales to be a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities."
  • Torfaen Memory Assessment ServiceDecember 10 2019Torfaen Memory Clinic is a team of healthcare professionals based at Ty Sirol Unit, County Hospital who assess, support, advise and provide treatment for people with memory problems and dementia.
  • Social Support for People with Memory Problems Living in TorfaenTorfaen Memory Service have compiled a list of social support available for people with memory problems who live in Torfaen. These include day centres, groups, keeping you company at home, helping you get out, 1 to 1 befriending, and direct payments scheme.
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Groups

  • Torfaen Carers CentreThe centre offers support to carers within the community and also runs specific groupsCrane Street, Pontypool NP4 6LY, United Kingdom01495 753838
  • Information and Advice (Widdershins Centre)Age Connects Torfaen provides a free independent and confidential Information and Advice service to older people in the area. Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Torfaen Community TransportTorfaen Community Transport provides door-to-door transport from people's homes in Torfaen to destinations of their choice.32 Gwent Square, Cwmbran, NP44 1PL01633 874686
  • Torfaen dementia support workersTorfaen dementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 768627
  • Widdershins Lunch ClubWiddershins Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Llanyravon dementia cafeThe Llanyravon dementia cafe provides information about living with dementia and other services available locally in an informal and comfortable environment.Llanyravon Methodist Church, Llanyravon Way, Llanyravon, Cwmbran, NP44 8RA01495 768744
  • Griffithstown dementia cafeThe Griffithstown dementia cafe provides information about living with dementia and other services available locally in an informal and comfortable environmentSt Hilda's Church, 2 Kemys Street, Griffithstown, Pontypool, Torfaen, NP4 5DT01495 768627
  • Torfaen social group for younger people living with dementiaTorfaen social group gives younger people living with dementia the opportunity to take part in structured activities.The Little Crown Inn, Elled Road, Wainfelin, Pontypool, NP4 6DR01495 768744
  • Torfaen floating support serviceAge Connects Torfaen provide a free floating support service which offers a wide ranging support to older people to help them remain independent. Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Pontnewynydd Lunch ClubPontnewynydd Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.Pontnewynydd Community Centre, Zion Hill, Pontnewynydd, Torfaen, NP4 6SA01495 769264https://www.ageconnectstorfaen.org.uk
  • Torfaen care and repairTorfaen care and repair provide a free comprehensive home improvement and advisory service to older and disabled people living in Torfaen to help them remain in their own homes in greater comfort warmth and security.Ty'r Felin, Lower Mill Field, Pontypool, Torfaen, NP4 0XJ01495 745936https://www.careandrepair.org.uk/care-and-repair-agencies/torfaen/
  • Torfaen men’s clubAge Connects Torfaen run a dedicated men only group who meet the second Wednesday of the month. The group meet for a home cooked meal and then take part in a range of activities.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Extend ExerciseExtend Exercise provides gentle exercise to music for older people and for anyone of any age with a disability. The aim of the class is to promote health increase mobility and independence improve strength co-ordination and balance and to counteract loneliness and isolation.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Croesyceiliog Lunch ClubCroesyceiliog Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.St Mary's Church, Bryn Eglwys Croesyceiliog, Cwmbran, NP44 2LF01495 769264https://www.ageconnectstorfaen.org/
  • Help at HomeAge Connects Torfaen Help at Home service can offer help around the home such as cleaning, shopping and accompanying people to appointments.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 774455https://www.ageconnectstorfaen.org/
  • Torfaen dementia day careTorfaen dementia day care and support service provides care and support in a safe and comfortable group setting.Ty Nant Ddu Day Centre, Hospital Road, Pontnewynydd, Pontypool, Torfaen, NP4 8LE01495 221532
  • Torfaen information and advice serviceAge Connects Torfaen provides a free independent and confidential information and advice service to older people in the area.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 774455https://www.ageconnectstorfaen.org/
  • Torfaen friendship groupTorfaen friendship group offers people the opportunity to meet up with friends or meet new people with an morning of chat refreshments and activities.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 774455https://www.ageconnectstorfaen.org/
  • Torfaen Nordic walking groupNordic Walking is an enhanced walking experience that uses poles to work your upper body as well as your legs. Our qualified instructor carefully plans the route taking in the beautiful scenery that Torfaen has to offer.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • SewingAge Connects Torfaen run a weekly sewing class suitable for all abilities.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Torfaen befriending serviceTorfaen befriending service offers companionship and support and helps people carry on doing the things they enjoy or to try new activities.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01633 665110
  • Torfaen medication prompting serviceCrossroads Care South East Wales - Medication Prompting provide trained carer support workers to help people with dementia to take their medication.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 769996https://www.carers.org
  • Community support serviceThe community support service provided by the Alzheimer's Society Torfaen is for people with dementia who need support to carry on doing the things they enjoy or to try new activities.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 768627
  • Torfaen dementia day serviceAge Connects Torfaen provide a day specialist dementia day service offering support and providing activities and care in a stimulating environment.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Torfaen advocacy serviceTorfaen advocacy service supports people to understand their rights and express their views. Advocates use their expertise to empower people to make informed choices and decisions.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 221393
  • New Inn Lunch ClubNew Inn Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.The Hwy New Inn, Pontypool, Torfaen, NP4 0PH01495 769264https://www.ageconnectstorfaen.org/
  • Abersychan Lunch ClubAbersychan Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Torfaen art groupAlzheimer's Society in Torfaen run a weekly art group for people living with dementia.Llantarnum Grange, St. Davids Road, Cwmbran, NP44 1PD01495 768744
  • Torfaen personal care serviceCrossroads Care South East Wales provide trained support workers to help people to maintain their physical psychological and emotional well-being.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 769996https://www.carers.org
  • Aneurin Bevan University Health BoardAneurin Bevan University Health Board covers the areas of Blaenau Gwent, Caerphilly, Monmouthshire, Newport, Torfaen and South Powys. It serves an estimated population of over 639,000, approximately 21% of the total Welsh population.St Cadoc's Hospital, Lodge Road, Caerleon, Newport, Wales, NP18 3XQ01873 732732https://www.aneurinbevanhb.wales.nhs.uk/
  • Torfaen food and drink serviceCrossroads Care South East Wales provide trained carer support workers to help with the preparation re-heating serving and feeding of food.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 769996https://www.carers.org
  • Alzheimer’s Society WalesAlzheimer’s Society is the leading care and research charity for people with dementia their families and carers. The Alzheimer's Society Wales provides a wide range of services to support people living with dementia and their carers.16 Columbus Walk, Atlantic Wharf, Cardiff, CF10 4BY02920 480593https://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200139
  • Check CallsCrossroads Care South East Wales can provide check calls in order to ensure that any person living with dementia is safe has supplies and has contact with someone during the day.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 769996https://www.carers.org
  • Arts and crafts groupAge Connects Torfaen run a weekly arts and crafts class suitable for people of all abilities.Age Connects Torfaen, Widdershins Centre, East Avenue, Griffithstown, Pontypool, Torfaen, NP4 5AB01495 769264https://www.ageconnectstorfaen.org/
  • Dementia AdventureDementia Adventure is a charity dedicated to bringing the benefits of nature based activities and adventures into the lives of more people living with dementia. Unit 11, Old Park Farm, Main Road, Ford End, Essex, CM3 1LN01245 237548 https://www.dementiaadventure.co.uk/
  • The ExtraCare Charitable TrustThe ExtraCare Charitable Trust ia a not for profit developer and operator of ExtraCare Villages and Housing schemes which has retirement villages and housing schemes across the Midlands and North. ExtraCare's award-winning Enriched Opportunities Programme® (EOP) supports residents with dementia and dementia-related conditions.7 Harry Weston Road, Binley Business Park, Coventry, CV3 2SN024 7650 6011https://www.extracare.org.uk
  • Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 4160https://www.dementiauk.org
  • Parkinson’s UKParkinsonism is a feature associated with some dementias, particularly Parkinson's dementia and dementia with Lewy bodies. Parkinson's UK offers support for patients and carers, including excellent advice on coping with daily activities.215 Vauxhall Bridge Road, London, SW1V 1EJ0808 800 0303https://www.parkinsons.org.uk
  • Self Management UKSelf Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.32-36 Loman Street, London SE1, United Kingdom03333 445 840https://selfmanagementuk.org/
  • Diabetes UKDiabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.Macleod House, 10 Parkway, London, NW1 7AA0345 123 2399https://www.diabetes.org.uk/
  • Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 3500https://www.alzheimers.org.uk/
  • The Reader OrganisationThe Reader Organisation is a charitable social enterprise working to connect people with literature through shared reading. The older people and dementia work programme uses shared reading to improve quality of life and care for people living with dementia and their carers.Calderstones Mansion House, Calderstones Park, Liverpool, L18 3JB0151 729 2200https://www.thereader.org.uk/
  • Marie Curie Cancer CareMarie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.89 Albert Embankment, London, SE1 7TP0800 716 146https://www.mariecurie.org.uk
  • Macmillan Cancer SupportMacmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.Macmillan Cancer Support, 89 Albert Embankment, London, SE1 7UQ0808 808 0000https://www.macmillan.org.uk
  • Foundation for People with Learning DisabilitiesThe Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.1st Floor, Colechurch House, 1 London Bridge Walk, London, SE1 2SX020 7803 1100https://learningdisabilities.org.uk/
  • Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.Iris Murdoch Building, University of Stirling, Stirling, FK9 4LA, Scotland01786 467740https://www.dementia.stir.ac.uk
  • Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.St Andrews House, 48 Princess Road East, Leicester, LE1 7DR0116 252 9515https://www.psige.org/info/dementia+workstream
  • All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.House of Commons, London, SW1A 0AAhttps://www.alzheimers.org.uk/appg
  • The National Valuing Families ForumThe National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.32-36 Loman Street, London, SE1 0EHhttps://professionals.carers.org/health/the-national-valuing-families-forum,7028,PR.html
  • British Institute of Learning DisabilitiesBritish Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.Birmingham Research Park, 97 Vincent Drive, Edgbaston, Birmingham, B15 2SQ0121 415 6960https://www.bild.org.uk/
  • British Heart FoundationThe British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.Greater London House, 180 Hampstead Road, London, NW1 7AW020 7554 0000https://www.bhf.org.uk/
  • Sporting Memories NetworkThe Sporting Memories Network, also known as Replay, is a national charity which promotes the use of sporting memories to improve the wellbeing of older people and to tackle dementia, depression and social isolation.Orchard House, Long Street, Topcliffe. North Yorkshire, YO7 3RLhttps://sportingmemoriesnetwork.com
  • The Reading AgencyThe Reading Agency is a charity working to inspire more people to read more, encourage them to share their enjoyment of reading and celebrate the difference that reading makes to all our lives. Free Word Centre, 60 Farringdon Road, London, EC1R 3GA0207 324 2544https://readingagency.org.uk/
  • Bladder and Bowel FoundationThe Bladder and Bowel Foundation is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals. SATRA Innovation Park, Rockingham Road, Kettering, Northants, NN16 9JH0845 345 0165https://www.bladderandbowelfoundation.org/
  • Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers. The Music Base, King's Place, 90 York Way, London, N1 9AG020 7520 1492https://www.arts4dementia.org.uk/
  • Ladder to the MoonLadder to the Moon provides workforce and service development that enables health and care organisations to develop active, creative, vibrant care services. It uses approaches that incorporate creativity and the arts, and involve staff, older people living with dementia and other long-term conditions, and the wider community.Studio 522, Highgate Studios, 53-79 Highgate Road, London, NW5 1TL0203 784 9649https://www.laddertothemoon.co.uk
  • Art Group Torfaen Younger PeopleThis is for People with Dementia diagnosed under 65 and their Carers, family and Friends Residents of Torfaen Available weekly on Thursdays 10 am till 12 pm Our skill or interest based activity group can give you the opportunity to take part in a fun, ...Llantarnam Grange, Cwmbran, UK01495 768744
  • ThriveThrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulationThe Geoffrey Udall Centre, Beech Hill, Reading, Berkshire, RG7 2AT0118 988 5688https://www.thrive.org.uk/
  • Activity GroupThis group is for people with Dementia, carers, family and friends. It is run by Karina and also Volunteers and Facilitators. It  is held Every Thursday at 10:00 am until 12:45 pm It will be held at; Llanyrafon Methodist Church NP44 8RA  07484088981
  • Young onset dementia groupThe Young onset dementia group provides a relaxed and friendly environment for people with a cognitive impairment or young early onset dementia to socialise and take part in activities. We meet every Monday 12.15-3.15pm and Wednesday 10.30-2.30pm01495 769264
  • Monmouthshire Tea DanceThe Monmouth Intergenerational Tea Dance intends to bring together a wide range of people from the community, mostly older people including people with dementia and frailty plus their carers. A qualified dance instructor leads an hour of dancing, followed by refreshments and socialising.Bridges Centre, Drybridge Street, Monmouth, UK 01600 715638http://www.bridgescommunity.org.uk/
  • “Zest for Life” – Young Onset Dementia ServiceWe are a supportive group for younger individuals. Suitable for those living with young onset dementia or cognitive impairment. We welcome individuals and carers across Gwent. Weekly Friday drop-in groupWiddershins Centre, East Ave, Griffithstown, Pontypool NP4 5AB01495 769264
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