DementiaRoadmap Wales

Resources

• Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
• Active Minds – dementia activity resourcesFebruary 5 2016Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
• The Daily SparkleThe Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
• Fix dementia care – NHS and care homesApril 29 2016This report published by the Alzheimer's Society marks the second phase of a campaign looking at the experiences of people with dementia in a range of health and care settings. It contains the results of a survey of care home managers and the voices of people with dementia, their families and carers.
• Making your home dementia friendlyOctober 20 2015This booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
• Dementia and homecare: driving quality and innovationFebruary 22 2016This report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment.
• Moving into a care home: advice for lesbian, gay and bisexual peopleFebruary 22 2012This factsheet published by the Alzheimers Society provides some advice for lesbian, gay and bisexual people on choosing a suitable care home and suggests things to think about when the person moves in.
• Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
• Duty of Candour: Information for all providersMarch 15 2015This document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
• Cracks in the pathwayOctober 30 2014This report presents the findings of a Care Quality Commission review of the care people living with dementia receive as they moved between care homes and acute hospitals.
Pain in People with Dementia: A Silent TragedyJanuary 7 2015This report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.
Always a last resort: Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homesApril 4 2008This report published by the All-Party Parliamentary Group on Dementia (APPG) examines the problem of the over prescription of antipsychotic drugs to people with dementia living in care homes and proposes workables solutions.
The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
Prepared to care – Challenging the dementia skills gapJune 4 2009This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
New models of care for dementiaApril 9 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
Assistive technology – devices to help with everyday livingAugust 12 2013This factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.
Direct PaymentsMarch 7 2019If you have had an assessment that shows you are eligible for social care services, you may prefer to organise your services yourself rather than have the Council do this for you. This is called ‘Direct Payments’. 
Telehealth and Telecare AwareJuly 11 2014This online information portal provides a news and information service for people interested in telecare and telehealth.
Find me good careOctober 23 2012This website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.
QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
Dementia: Finding housing solutionsMay 7 2013This report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
Social Support for People with Memory Problems Living in TorfaenDecember 10 2019Torfaen Memory Service have compiled a list of social support available for people with memory problems who live in Torfaen. These include day centres, groups, keeping you company at home, helping you get out, 1 to 1 befriending, and direct payments scheme.
CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
Dementia-friendly technology charterJune 23 2014The Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.
Handy guide to selecting a care homeJanuary 28 2013This guide published by the Alzheimer’s Society is designed to be taken into care homes by people with dementia and their families and provides an independent and objective guide to what makes good quality care.
Commissioning domiciliary care for people with dementia and their carersNovember 28 2009The purpose of this paper is to assist commissioners in ensuring that homecare for people with dementia is appropriate to their needs and/or the needs of their carers.
Supporting people with dementia at homeJanuary 14 2013This training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
AT DementiaMarch 13 2014AT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.
Optimising treatment and care for behavioural and psychological symptoms of dementiaJuly 28 2011This best practice guide has been developed in consultation with an advisory group of leading clinicians specialising in dementia.
Dewis CymruApril 27 2018Dewis Cymru is a website that provides information and advice about well-being. In addition to health information, Dewis Cymru provides information about people and services in your area that can help you with the things that matter to you.
Low expectations: attitudes on choice, care and community for people with dementia in care homesFebruary 26 2013This report published by the Alzheimer’s Society stresses the need to lift expectations and to strengthen existing minimum standards to boost quality of life for people with dementia in care homes.
Support, Stay, Save: care and support of people with dementia in their own homesApril 4 2011This report provides evidence from over 2,000 carers, people with dementia and home care workers on the aspirations, experiences and outcomes of providing dementia care in the community in England, Wales and Northern Ireland.
See me, not just the dementiaJune 22 2008This report looks at the experiences of people with dementia living in care homes in England, with a particular focus on whether their care offers dignity and respect.
Understanding out of hospital dementia careMay 10 2011This report, published by Healthcare at Home, explores home-based models of care that will keep people with dementia out of hospital.
State of Care 2013/14October 16 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
Case for change – Communities for people living with dementiaNovember 28 2011This document explains the evidence that has been used in designing the service to support people with dementia, whether living at home or in care homes, as well as dementia-specific elements of other Communities.
Journey of Caring: An analysis of long-term care for dementiaSeptember 19 2013This report published by Alzheimer’s Disease International highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.
Making your home a better place to live with dementiaJune 9 2014This briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.
Service specification for dementia: better care at home, and in care homesJuly 28 2011This specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.
Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementiaNovember 28 2011This guide to personalisation and dementia has been written for, and with input from, people living with dementia, their families and friends, and the practitioners who support them.
A vision of care fit for the twenty-first centurySeptember 3 2014This report published by the Commission on Residential Care offers a vision of housing with care fit for the twenty-first century, not bound by existing definitions but based on the outcomes that people want and value.
Memory BagsSeptember 25 2019Memory bags are FREE to borrow from Torfaen libraries and are loaned for 3 weeks. There are ten themes to choose from. Memory bags contain a variety of items to be shared and enjoyed. For instance, listen to music or watch a film together; look ...
Torfaen Technology CoachJanuary 22 2020Torfaen Technology Coach is a service funded by Welsh government that provides free technology advice, through free one-to-one support and free group support.
Independent Living Equipment in GwentNovember 1 2019Cefndy-Medequip work with local authorities and the NHS to provide the community equipment service in Gwent. They specialise in aids and equipment for the home, mobility, bathrooms, bedrooms, kitchen and dining, living room and outdoors. Their catalogue has a section called "Dementia Friendly Collection".
Social Services Support for DementiaMarch 28 2019Even if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
NHS Continuing Healthcare and NHS-funded Nursing CareNHS Continuing Healthcare  If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
Library Carers Card & Library at Home ServiceSeptember 25 2019If you are a carer for someone who loves to read but is unable to visit the library due to ill health or disability, you can apply for a carers card to enable you to borrow a total of 50 items for yourself and the ...
Home Safety House Check by South Wales Fire and Rescue ServiceApril 18 2019South Wales Fire and Rescue offer you the opportunity to have a FREE Safe and Well visit in your home. This will be carried out by firefighters from your local Fire Station and their Home Safety Team. The visit takes about 30 minutes and they will provide and install free smoke alarms, heat detectors and carbon monoxide alarms where risk is identified. Alarms for people who are Deaf or hard of hearing are also available.
Preparing for a Social Services Care Needs AssessmentMarch 28 2019Tips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below.  http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment  
Dementia Friendly Housing CharterMarch 23 2017This toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
The Herbert Protocol for Missing People with DementiaJanuary 22 2020The Herbert Protocol asks carers, family members and friends of people with Dementia, to complete a form, recording all vital details about their loved one. This information can then be shared quickly with the relevant agencies should their loved one be reported missing.
The Royal British Legion – Admiral Nurse ServiceApril 24 2019The Royal British Legion Admiral Nurses offers specialist support, information and advice to the carers of people with dementia. It is available to anyone who has served in the British Armed Forces their family and carers.
Eye Tests at HomeApril 4 2019Eye care is important for people with dementia and may be provided at home or in a care home. Eye examinations are free for over 60's and for some younger people with dementia, as are home visits if it is difficult to get to a practice. Benefits may be available to help towards the cost of glasses. 
Living with early-stage dementiaNovember 20 2019Living with early-stage dementia is a comprehensive guide published by Age UK, also known as Age Cymru in Wales.
Advance Care PlanningMarch 28 2019If you were to lose the capacity to make decisions about your life today, what are the important things you would like those caring for you to know about you and what you would want to happen? One way of making people aware of your wishes is by a process that is called advance care planning.
Priority Services RegisterOctober 11 2019Did you know that every gas, water and electricity supplier – the companies you pay your bills to, and your electricity distribution network, has what’s called a Priority Services Register (PSR)? The Priority Services Register (PSR) is a free service offered throughout the energy industry available to domestic customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs.
Useful Apps for Dementia Patients & CarersApril 25 2019There are many apps available that can be downloaded to a smartphone or tablet  that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
Dementia Action Plan for Wales 2018 – 2022November 20 2019The Welsh government have adopted the Dementia Action Plan for Wales 2018 - 2022, with Vaughan Gething, Cabinet Secretary for Health and Social Services, stating that,  "Our vision is for Wales to be a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities."
Caring for someone with dementiaCaring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
Mouth care for people living with dementiaMouth care for people living with dementia is a leaflet published by Aneurin Bevan Community Dental Service to provide information for carers. Information includes: mouth care, diet, brushing teeth and gums, denture care, and visiting the dentist.
Living with Dementia – 51 Tips to Help You With Daily LivingJune 26 2019In this in-depth infographic and article UK Care Guide offers a range of tips of advice to help people to live well with dementia.
ENABLE – Support for Independent LivingNovember 1 2019ENABLE provides support for independent living through adaptations, so people can access all the key facilities in their homes. Whether you own or rent your home, the basic arrangements are the same.
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