GPs and the primary care team can provide carers with invaluable support, advice and information. For example, they can provide information and advice on medical conditions of and treatments for the person being cared for to help the carer feel more confident in their caring role.
Primary care provision includes many services that can support carers in their caring role and in looking after their own health including, occupational therapists, physiotherapists, continence advisors and dieticians. The primary care team may also be able to provide supporting letters and information to enable carers and the person being cared for to access benefits such as Attendance Allowance or for the local housing department or blue badge scheme.
It is important for GPs to record that someone is a carer on their medical records. Knowing that someone is a carer and likely to be under pressure at times, can help the primary care team to offer the advice and support carers need. For example, carrying out home visits to the carer or the person being cared for if the caring responsibilities make it difficult to attend appointments at the surgery. The primary care team may also be able to arrange appointments for both the carer and the person being cared for at the same time to avoid having to visit the surgery twice.
- Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
- Accessible Information StandardJuly 28 2015The Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
- Fulfilled Lives, Supportive Communities: A Strategy for Social Services in Wales over the next decadeFebruary 21 2007This strategy describes how modern accessible and responsive social services, delivered flexibly, consistently and sustainably across organisational boundaries will contribute to a better Wales and to improving the lives of its citizens.
- Dementia stakeholder groups – action plansJune 29 2011These plans outline actions for improvement across four key priority areas: improving service provision, early diagnosis, access to information and training.
- Loss and bereavement in people with dementiaFebruary 22 2016This leaflet published by Alzheimer Scotland addresses the lack of help and information available for formal and informal carers of people with dementia who are bereaved.
- Grief, loss and bereavementThis factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.
- Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
- John’s CampaignJanuary 15 2018John’s Campaign is about making carers of people with dementia welcome on hospital wards and reflects a positive attitude towards the importance of carers and sensitivity to their needs.
- Women and Dementia: A global research overviewJune 5 2015This report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective.
- Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
- Information about Lewy Body DementiaApril 27 2015This handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
- The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
- QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
- Carers AssessmentJanuary 13 2015This factsheet published by Carers UK outlines the Carers Assessment, a legal entitlement which explores how being a carer affects someone, how much caring they can realistically do, and any help they may need.
- Award in Understanding DementiaMarch 18 2015The Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
- NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
- Dementia: A state of the nation report on dementia care and support in EnglandNovember 29 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
- The dementia guideFebruary 22 2014This guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
- Reading well books on prescription for dementiaFebruary 4 2015The Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
- Improving services and support for people with dementiaJuly 3 2007This report published by the National Audit Office presents findings from a study into the health and social care services available for people with dementia and their unpaid carers in England and whether they are providing effective and good quality support; and the scope for better use of resources against a background of rising demand.
- Caregiver Strain IndexJuly 3 1983The Caregiver Strain Index (CSI) is a tool that can be used to quickly identify families with potential caregiving concerns.
- The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015The Sound Doctor is a website full of films developed to help individuals, their relatives and carers to better understand the condition so that they can all take control and get the most out of life.
- Carers Evidence Summits ebookDecember 5 2014NHS Improving Quality has produced an ebook to share the Commitment to Carers achievements over the last year. It includes the findings from the regional Carers Evidence Summits and links to over 50 case studies.
- CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
- Caring for CarersMarch 3 2015The Caring for Carers Hub developed by the Royal College of General Practitioners is a web based tool that can help primary care staff to more effectively support carers and the people they care for.
- Recognised, valued and supported: Next steps for the Carers StrategyDecember 3 2010This strategy identifies the actions that the Government will take between 2011-15 to support its priorities to ensure the best possible outcomes for carers and those they support.
- What about me? Remembering the needs of carersJuly 29 2010This short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.
- Reducing the use of antipsychotic drugsJuly 21 2011This leaflet is for people with dementia and their carers who want to know more about behavioural and psychological symptoms of dementia and how they can be prevented and treated.
- How would I know? What can I do?December 6 2012This guide, developed by the National Council for Palliative Care (NCPC), provides advice for carers and those who work with people with dementia on how to help with pain and distress in people with the condition.
- Commissioning for Carers PrinciplesDecember 5 2014This practical tool is part of a suite of products that will help commissioners to deliver what carers say is important to them in ways that have been shown to work effectively and efficiently in practice.
- Dementia CarerJune 9 2014Dementia Carer is a website that provides access to a wide range of video clips featuring carers discussing what helps them cope with issues they encounter in caring for someone with dementia.
- The Triangle of Care – carers included: A guide to best practice for dementia careSeptember 4 2013The Triangle of Care is a model for dementia care that supports a partnership approach between the person with dementia, the staff member and carer. It is designed to ensure that carers are appropriately included and involved in the care of people with dementia, particularly in hospital settings.
- Listen, talk, connect: Communicating with people living with dementiaSeptember 5 2014This handbook published by Care UK is a guide to support carers relatives and friends who want to communicate effectively with someone living with dementia.
- Good to go: A guide to dementia-friendly days outApril 28 2015This handbook published by Care UK aims to support carers relatives and friends who want to enjoy a variety of outings and trips with someone living with dementia.
- A road less rocky – supporting people with dementiaSeptember 4 2013This report published by the Carers Trust highlights that carers of people with dementia are not getting the support and advice they often desperately need.
- Carer’s health checkMay 8 2014A Carer's health check should be offered to any newly-registered carers according to local guidelines or the terms of any Local Enhanced Service.
- Dewis CymruApril 27 2018Dewis Cymru is a website that provides information and advice about well-being. In addition to health information, Dewis Cymru provides information about people and services in your area that can help you with the things that matter to you.
- Dementia ConnectApril 26 2018Dementia Connect is Alzheimer's Society's comprehensive services directory for people affected by dementia in England, Wales and Northern Ireland.
- Turning up the volume: unheard voices of people with dementiaJanuary 23 2018This report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia. It provides an insight into the gap between the things that people living with dementia need to live well and their day-to-day reality.
- National Audit of Dementia – third reportJuly 13 2017The National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016.
- Disabled Bus PassFebruary 28 2019If you are no longer able to drive on medical grounds, you can apply for a free bus pass from the local council to get around.
- State of Caring 2017August 25 2017This survey undertaken by Carers UK paints a comprehensive picture of caring in 2017 and more than 7,000 people responded, making it the largest State of Caring Survey to date.
- A Guide to Respite for People Affected by DementiaNovember 26 2018This guide gives carers and people living with dementia the information they need when considering respite, to help them to explore respite alternatives, and sets out their rights.
- Direct PaymentsMarch 7 2019If you have had an assessment that shows you are eligible for social care services, you may prefer to organise your services yourself rather than have the Council do this for you. This is called ‘Direct Payments’.
- The Royal British Legion – Admiral Nurse ServiceApril 24 2019The Royal British Legion Admiral Nurses offers specialist support, information and advice to the carers of people with dementia. It is available to anyone who has served in the British Armed Forces their family and carers.
- Social Services Support for DementiaMarch 28 2019Even if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
- Preparing for a Social Services Care Needs AssessmentTips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below. http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment
- Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
- Lasting Power of AttorneyMarch 28 2019After a diagnosis of Dementia, it is worth forward planning including setting up Lasting Power of Attorney for both health and financial affairs.
- CEA Cinema CardMarch 7 2019The CEA Card is a national card scheme developed for UK cinemas by the UK Cinema Association (UKCA). The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.
- NHS Continuing Healthcare and NHS-funded Nursing CareMarch 28 2019NHS Continuing Healthcare If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
- UnforgettableApril 4 2019Unforgettable.org is a website offering advice and community as well as products to help improve the lives of people with dementia. It provides some interesting blogs of people's experiences with dementia including real stories and diaries.
- Disabled Person’s RailcardMarch 28 2019The Disabled Persons Railcard is for people with a disability that makes travelling by train difficult. It entitles you to qualify for 1/3 off rail fares for you and a companion travelling with you.
- Advance Care PlanningIf you were to lose the capacity to make decisions about your life today, what are the important things you would like those caring for you to know about you and what you would want to happen? One way of making people aware of your wishes is by a process that is called advance care planning.
- Benefits for people affected by dementiaApril 11 2019The Alzheimer's Society website provides information about a number of benefits that may be available to you. This includes details on what and how you can claim.
- Useful Apps for Dementia Patients & CarersApril 25 2019There are many apps available that can be downloaded to a smartphone or tablet that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
- Memory BagsSeptember 25 2019Memory bags are FREE to borrow from Torfaen libraries and are loaned for 3 weeks. There are ten themes to choose from. Memory bags contain a variety of items to be shared and enjoyed. For instance, listen to music or watch a film together; look ...
- Gwent Access to AdvocacyAugust 30 2019Gwent Access to Advocacy GATA provides a single point of access for advocacy services in Gwent covering Blaenau Gwent, Caerphilly, Monmouthshire and Torfaen. (For Newport contact Dewis Centre for Independent Living (CIL))
- Library Carers Card & Library at Home ServiceSeptember 25 2019If you are a carer for someone who loves to read but is unable to visit the library due to ill health or disability, you can apply for a carers card to enable you to borrow a total of 50 items for yourself and the ...
- Priority Services RegisterOctober 11 2019Did you know that every gas, water and electricity supplier – the companies you pay your bills to, and your electricity distribution network, has what’s called a Priority Services Register (PSR)? The Priority Services Register (PSR) is a free service offered throughout the energy industry available to domestic customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs.
- Independent Living Equipment in GwentNovember 1 2019Cefndy-Medequip work with local authorities and the NHS to provide the community equipment service in Gwent. They specialise in aids and equipment for the home, mobility, bathrooms, bedrooms, kitchen and dining, living room and outdoors. Their catalogue has a section called "Dementia Friendly Collection".
- Carers WalesCarers Wales wants a society that respects, values and supports carers. To do this they: give expert advice, information and support. connect carers so no-one has to care alone. campaign together for lasting change. innovate to find new ways to reach and support carers. Check ...
- Caring for someone with dementiaNovember 20 2019Caring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
- Mouth care for people living with dementiaMouth care for people living with dementia is a leaflet published by Aneurin Bevan Community Dental Service to provide information for carers.
Information includes: mouth care, diet, brushing teeth and gums, denture care, and visiting the dentist.
- Dementia Action Plan for Wales 2018 – 2022The Welsh government have adopted the Dementia Action Plan for Wales 2018 - 2022, with Vaughan Gething, Cabinet Secretary for Health and Social Services, stating that, "Our vision is for Wales to be a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities."
- Torfaen Memory Assessment ServiceDecember 10 2019Torfaen Memory Clinic is a team of healthcare professionals based at Ty Sirol Unit, County Hospital who assess, support, advise and provide treatment for people with memory problems and dementia.
- Social Support for People with Memory Problems Living in TorfaenTorfaen Memory Service have compiled a list of social support available for people with memory problems who live in Torfaen. These include day centres, groups, keeping you company at home, helping you get out, 1 to 1 befriending, and direct payments scheme.
- Living with early-stage dementiaNovember 20 2019Living with early-stage dementia is a comprehensive guide published by Age UK, also known as Age Cymru in Wales.
- FREE Dementia Friends Sessions at Cwmbran Shopping CentreJanuary 7 2020Cwmbran shopping centre are holding FREE Dementia Friends sessions at the management offices in Powys house. A Dementia Friend is somebody that learns about dementia so they can help their community. Too many people affected by dementia feel that society fails to understand the condition they live with. Dementia Friends help by raising awareness and understanding, so that people living with dementia can continue to live in the way they want.
- The Herbert Protocol for Missing People with DementiaJanuary 22 2020The Herbert Protocol asks carers, family members and friends of people with Dementia, to complete a form, recording all vital details about their loved one. This information can then be shared quickly with the relevant agencies should their loved one be reported missing.
- Torfaen Technology CoachTorfaen Technology Coach is a service funded by Welsh government that provides free technology advice, through free one-to-one support and free group support.
- Torfaen Carers CourseTorfaen Carers Course is a 7 week rolling programme for carers of people with Dementia. It provides information and advice on how to manage symptoms, how a diagnosis is made, your rights as a carer, managing your relatives finances, and ongoing support for looking after yourself as a carer.
- Torfaen Carers CentreThe centre offers support to carers within the community and also runs specific groupsCrane Street, Pontypool NP4 6LY, United Kingdom01495 firstname.lastname@example.org
- Llanyravon carers support groupLlanyravon carers support group gives people the opportunity to meet with others who understand some of what they are going through.Llanyravon Methodist Church, Llanyravon Way, Llanyravon, Cwmbran, NP44 8RA01495 768627
- Griffithstown carers support groupGriffithstown carers support group gives people the opportunity to meet with others who understand some of what they are going through.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 768744
- Torfaen emergency response serviceTorfaen emergency response service provides 24 hour support to carers when an emergency occurs involving the person that they care for.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 769996https://www.carers.org
- Torfaen respite care serviceCrossroads Care South East Wales' respite care service enables carers to take a break from their caring role.Ty Siriol County Hospital, Coed Y Gric Road, Griffithstown, Pontypool, Torfaen, NP4 5YA01495 769996https://www.carers.org
- Aneurin Bevan University Health BoardAneurin Bevan University Health Board covers the areas of Blaenau Gwent, Caerphilly, Monmouthshire, Newport, Torfaen and South Powys. It serves an estimated population of over 639,000, approximately 21% of the total Welsh population.St Cadoc's Hospital, Lodge Road, Caerleon, Newport, Wales, NP18 3XQ01873 email@example.com://www.aneurinbevanhb.wales.nhs.uk/
- Alzheimer’s Society WalesAlzheimer’s Society is the leading care and research charity for people with dementia their families
and carers. The Alzheimer's Society Wales provides a wide range of services to support people living with dementia and their carers.16 Columbus Walk, Atlantic Wharf, Cardiff, CF10 4BY02920 firstname.lastname@example.org://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200139
- RevitaliseRevitalise is a national charity providing short breaks and holidays (respite care) for disabled people and carers. We also offer inspirational opportunities for volunteers through one of the largest, most diverse volunteer programmes in the UK.212 Business Design Centre, 52 Upper Street, London, N1 0QH0303 303 email@example.com://revitalise.org.uk/
- Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 firstname.lastname@example.org://www.dementiauk.org
- Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 email@example.com://www.alzheimers.org.uk/
- Carers DirectCarers Direct offer a helpline for carers that need help with their caring role and want to talk to someone about what options are available to them. PO Box 27079, Glasgow, G3 9EJ0300 123 1053https://www.nhs.uk/CarersDirect/carerslives/updates/Pages/CarersDirecthelpline.aspx
- Carers UKCarers UK is a national membership charity for carers, that is both a support network and a movement for change.20 Great Dover Street, London, SE1 4LX0808 808 firstname.lastname@example.org://www.carersuk.org/
- Employers for CarersEmployers for Carers provides practical, ‘hands-on’, help to employers to support carers in their workforce.20 Great Dover Street, London, SE1 4LX020 7378 email@example.com://www.employersforcarers.org/
- Carers TrustCarers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.32-36 Loman Street, London, SE1 0EH0844 800 firstname.lastname@example.org://www.carers.org
- Short Breaks NetworkThe Short Breaks Network is the national co-ordinating body for the short break sector in the UK, providing short breaks for disabled children, young people and their families. Melbourne House, 36 Chamberlain Street, Wells, Somerset, BA5 2PJ01749 689 email@example.com://www.shortbreaksnetwork.org.uk/
- All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.House of Commons, London, SW1A 0AAappg@alzheimers.org.ukhttps://www.alzheimers.org.uk/appg
- Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.Warstones Resource Centre, Warstones Drive, Wolverhampton, WV4 4PG0845 257 firstname.lastname@example.org://www.dementiapathfinders.org
- Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers. The Music Base, King's Place, 90 York Way, London, N1 9AG020 7520 email@example.com://www.arts4dementia.org.uk/
- “Zest for Life” – Young Onset Dementia ServiceWe are a supportive group for younger individuals. Suitable for those living with young onset dementia or cognitive impairment. We welcome individuals and carers across Gwent.
Weekly Friday drop-in groupWiddershins Centre, East Ave, Griffithstown, Pontypool NP4 5AB01495 769264
- Lunch Club – CwmbranThis is one of six community hubs in Torfaen, run as part of Age Concern Torfaen's Friends For Life befriending project. These are lunch clubs that also offer activities, such as card and board games, IT classes, arts & crafts, singalongs, knitting groups, pamper days, reading groups, guest speakers, cake decorating and summer trips.Court Farm and Oakfield Community Centre, Court Farm Estate, 21 Hogarth Close, Llantarnam, Cwmbran NP44 3DBtel: 01495 firstname.lastname@example.org