DementiaRoadmap Wales
Promoting living well with dementia across Wales
Torfaen Dementia Roadmap
The Torfaen Dementia Roadmap provides high quality information about the dementia journey alongside local information about services, support groups and care pathways to support people to live well with dementia.
Staying well in Torfaen during the Coronavirus outbreak
There are 5 key messages to help people in Torfaen to stay well during the Coronavirus outbreak:
- Stay safe and well
- Stay connected
- Keep a sense of purpose
- Stay active
- Stay positive
Read about restarting services during the Covid-19 pandemic https://abuhb.nhs.wales/restarting-services/restarting-services
Download a leaflet explaining how to help people with memory problems and those living with dementia to remain safe during the Coronavirus outbreak.
Read answers to frequently asked questions covering general issues, health and care, and your rights https://www.olderpeoplewales.com/en/coronavirus/FAQs.aspx.
Join the Together we are stronger: Coronavirus information and discussion Facebook group, where members across Wales are already sharing information on what is going on where they live.
Download a directory of organisations and community resources that can provide telephone support for people struggling with their mental health and well-being and many also have helpful resources on their websites.
Download a list of organisations in Gwent that can provide bereavement support .
Download guidance from the British Psychological Society aimed at health and social care professionals which explains how to support older people and people living with dementia during self-isolation.
Download a booklet for children to help them understand the Coronavirus outbreak.
We support dementia friendly communities in which people with dementia are empowered to have high aspirations and feel confident, knowing they can contribute and participate in everyday activities that are meaningful to them. Find out more about dementia friendly communities.
The content on the Roadmap is organised into topics to reflect the dementia pathway. The main topics include: Understanding dementia, Worried about your memory, Diagnostic process, Post diagnosis support, Living well with dementia, Carer health and Planning for the future. Each main topic contains sub topics and each topic page provides access to a collection of useful resources and support groups that are relevant to that topic.
In addition to browsing through the topics we offer a range of tools to help you find what you need:
- View all the resources on a single page
- View all the groups on a single page
- Find groups using a postcode search
- Browse for groups on a map
- Perform an advanced search using a search form with filtering options
- View a sitemap of all the content on this Roadmap
We would like to hear your views about the Dementia Roadmap. Please spare a few minutes to complete our brief feedback form.
If you would like us to include information about a local group, initiative or service that you are involved with on the Roadmap, please use this form to tell us more about it.
Well pathway for dementia
- Understanding dementiaThe word dementia describes a set of symptoms that may include memory loss and difficulties with thinking, problem-solving or language. Dementia…
- Worried about your memoryFor anyone concerned about their own, or someone else’s memory, it is important to visit their GP or to seek help from relevant local…
- Diagnostic processDiagnosing dementia is often difficult, particularly in the early stages. The GP is usually the first person who is consulted either…
- Post diagnosis supportWhen someone is diagnosed with dementia, they should be encouraged to remain as independent as possible, and to continue to enjoy their…
- Living well with dementiaMany people are happier if they can remain independent and in their own homes as long as possible. It is important for clinicians to…
- Carer healthGPs and the primary care team can provide carers with invaluable support, advice and information. For example, they can provide information…
- Planning for the futureWhen someone is diagnosed with dementia, they should be encouraged to remain as independent as possible, and to continue to enjoy their…
Latest resources
- Alzheimer’s and Dementia Medication ManagementThose with dementia may start to forget to take their pills or refuse to take them. Here are some medication management tips for people with dementia or Alzheimer’s. Alzheimer’s and dementia medication management (singlecare.com) Proper medication management is critical for people living with dementia, and ...
- Useful tips on the COVID-19 vaccine for people with dementiaThis briefing developed by the Royal College of Psychiatrists, working with Dementia UK, includes useful tips for giving the COVID-19 vaccine without causing distress and how to explain the vaccination to someone who is living with dementia.
- Dementia wellbeing in the COVID-19 pandemicThis resource is primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia. This document takes the Dementia Well Pathway and sets out the adjustments and amendments needed to respond to the COVID-19 pandemic. It highlights key priorities and actions for each step in the pathway.
- The Herbert Protocol for Missing People with DementiaThe Herbert Protocol asks carers, family members and friends of people with Dementia, to complete a form, recording all vital details about their loved one. This information can then be shared quickly with the relevant agencies should their loved one be reported missing.
- Torfaen Carers CourseTorfaen Carers Course is a 7 week rolling programme for carers of people with Dementia. It provides information and advice on how to manage symptoms, how a diagnosis is made, your rights as a carer, managing your relatives finances, and ongoing support for looking after yourself as a carer.
- Torfaen Technology CoachTorfaen Technology Coach is a service funded by Welsh government that provides free technology advice, through free one-to-one support and free group support.
- FREE Dementia Friends Sessions at Cwmbran Shopping CentreCwmbran shopping centre are holding FREE Dementia Friends sessions at the management offices in Powys house. A Dementia Friend is somebody that learns about dementia so they can help their community. Too many people affected by dementia feel that society fails to understand the condition they live with. Dementia Friends help by raising awareness and understanding, so that people living with dementia can continue to live in the way they want.
- Social Support for People with Memory Problems Living in TorfaenTorfaen Memory Service have compiled a list of social support available for people with memory problems who live in Torfaen. These include day centres, groups, keeping you company at home, helping you get out, 1 to 1 befriending, and direct payments scheme.
- Torfaen Memory Assessment ServiceTorfaen Memory Clinic is a team of healthcare professionals based at Ty Sirol Unit, County Hospital who assess, support, advise and provide treatment for people with memory problems and dementia.
- Projections of Older People Living with Dementia and Costs of Dementia Care in the United Kingdom, 2019–2040This report published by the Care Policy and Evaluation Centre at the London School of Economics and Political Science provides projections of the number of older people (aged 65 and over) living with dementia in the UK and the costs of healthcare, social care and unpaid care from 2019 to 2040.
- Dementia Action Plan for Wales 2018 – 2022The Welsh government have adopted the Dementia Action Plan for Wales 2018 - 2022, with Vaughan Gething, Cabinet Secretary for Health and Social Services, stating that, "Our vision is for Wales to be a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities."
- Mouth care for people living with dementiaMouth care for people living with dementia is a leaflet published by Aneurin Bevan Community Dental Service to provide information for carers. Information includes: mouth care, diet, brushing teeth and gums, denture care, and visiting the dentist.
- Caring for someone with dementiaCaring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
- Living with early-stage dementiaLiving with early-stage dementia is a comprehensive guide published by Age UK, also known as Age Cymru in Wales.
- Independent Living Equipment in GwentCefndy-Medequip work with local authorities and the NHS to provide the community equipment service in Gwent. They specialise in aids and equipment for the home, mobility, bathrooms, bedrooms, kitchen and dining, living room and outdoors. Their catalogue has a section called "Dementia Friendly Collection".
- Carers WalesCarers Wales wants a society that respects, values and supports carers. To do this they: give expert advice, information and support. connect carers so no-one has to care alone. campaign together for lasting change. innovate to find new ways to reach and support carers. Check ...
- ENABLE – Support for Independent LivingENABLE provides support for independent living through adaptations, so people can access all the key facilities in their homes. Whether you own or rent your home, the basic arrangements are the same.
- Priority Services RegisterDid you know that every gas, water and electricity supplier – the companies you pay your bills to, and your electricity distribution network, has what’s called a Priority Services Register (PSR)? The Priority Services Register (PSR) is a free service offered throughout the energy industry available to domestic customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs.
- Library Carers Card & Library at Home ServiceIf you are a carer for someone who loves to read but is unable to visit the library due to ill health or disability, you can apply for a carers card to enable you to borrow a total of 50 items for yourself and the ...
- Memory BagsMemory bags are FREE to borrow from Torfaen libraries and are loaned for 3 weeks. There are ten themes to choose from. Memory bags contain a variety of items to be shared and enjoyed. For instance, listen to music or watch a film together; look ...
- The Many Faces of DementiaThis online course enables you to gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses of dementia, the people involved and the implications of these for our wider understanding.
- Gwent Access to AdvocacyGwent Access to Advocacy GATA provides a single point of access for advocacy services in Gwent covering Blaenau Gwent, Caerphilly, Monmouthshire and Torfaen. (For Newport contact Dewis Centre for Independent Living (CIL))
- Living with Dementia – 51 Tips to Help You With Daily LivingIn this in-depth infographic and article UK Care Guide offers a range of tips of advice to help people to live well with dementia.
- Guidelines for Helping the Confused Older PersonThese guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
- Risk reduction of cognitive decline and dementiaThe World Health Organization (WHO) guidelines on risk reduction of cognitive decline and dementia provide evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.
- Useful Apps for Dementia Patients & CarersThere are many apps available that can be downloaded to a smartphone or tablet that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
- The Royal British Legion – Admiral Nurse ServiceThe Royal British Legion Admiral Nurses offers specialist support, information and advice to the carers of people with dementia. It is available to anyone who has served in the British Armed Forces their family and carers.
- Home Safety House Check by South Wales Fire and Rescue ServiceSouth Wales Fire and Rescue offer you the opportunity to have a FREE Safe and Well visit in your home. This will be carried out by firefighters from your local Fire Station and their Home Safety Team. The visit takes about 30 minutes and they will provide and install free smoke alarms, heat detectors and carbon monoxide alarms where risk is identified. Alarms for people who are Deaf or hard of hearing are also available.
- Benefits for people affected by dementiaThe Alzheimer's Society website provides information about a number of benefits that may be available to you. This includes details on what and how you can claim.
- UnforgettableUnforgettable.org is a website offering advice and community as well as products to help improve the lives of people with dementia. It provides some interesting blogs of people's experiences with dementia including real stories and diaries.
- Eye Tests at HomeEye care is important for people with dementia and may be provided at home or in a care home. Eye examinations are free for over 60's and for some younger people with dementia, as are home visits if it is difficult to get to a practice. Benefits may be available to help towards the cost of glasses.
- Advance Care PlanningIf you were to lose the capacity to make decisions about your life today, what are the important things you would like those caring for you to know about you and what you would want to happen? One way of making people aware of your wishes is by a process that is called advance care planning.
- NHS Continuing Healthcare and NHS-funded Nursing CareNHS Continuing Healthcare If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
- Preparing for a Social Services Care Needs AssessmentTips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below. http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment
- Social Services Support for DementiaEven if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
- Lasting Power of AttorneyAfter a diagnosis of Dementia, it is worth forward planning including setting up Lasting Power of Attorney for both health and financial affairs.
- Disabled Person’s RailcardThe Disabled Persons Railcard is for people with a disability that makes travelling by train difficult. It entitles you to qualify for 1/3 off rail fares for you and a companion travelling with you.
- CEA Cinema CardThe CEA Card is a national card scheme developed for UK cinemas by the UK Cinema Association (UKCA). The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.
- Direct PaymentsIf you have had an assessment that shows you are eligible for social care services, you may prefer to organise your services yourself rather than have the Council do this for you. This is called ‘Direct Payments’.
- Disabled Bus PassIf you are no longer able to drive on medical grounds, you can apply for a free bus pass from the local council to get around.
- A Guide to Respite for People Affected by DementiaThis guide gives carers and people living with dementia the information they need when considering respite, to help them to explore respite alternatives, and sets out their rights.
- Dementia resource for care professionalsThis simple-to-use resource will support good practice in dementia care by giving access to essential information, case studies, data, and research.
- Dementia Friends – bookcase analogyIn this film Natalie Rodriguez, Dementia Friends Champion, uses a bookcase analogy to describe how dementia may affect a person. This simple explanation, orginally devised by Dr Gemma Jones, can be helpful for Dementia Friends Champions to explain dementia to others.
- Dewis CymruDewis Cymru is a website that provides information and advice about well-being. In addition to health information, Dewis Cymru provides information about people and services in your area that can help you with the things that matter to you.
- Dementia ConnectDementia Connect is Alzheimer's Society's comprehensive services directory for people affected by dementia in England, Wales and Northern Ireland.
- Dementia: Reduce your risk in 6 stepsThis document outlines 6 steps that people can take to improve both physical and mental health and significantly reduce the risk of developing dementia.
- Delirium awareness videoDelirium in older adults often goes unrecognised by health care professionals and can be poorly managed. This video was produced with the aim of improving recognition and management of delirium in any healthcare setting.
- NHS Health Check commissioning: Commissioner’s current and potential use of weighted financial remunerationThis report includes details of a literature review of commissioner’s current and potential use of weighted financial remuneration and provides recommendations for commissioners.
- Training resources to improve the dementia component of the NHS Health CheckThese training resources can be used by NHS Health Check trainers and practitioners to improve the quality of their delivery of the dementia component of the check.
- Turning up the volume: unheard voices of people with dementiaThis report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia. It provides an insight into the gap between the things that people living with dementia need to live well and their day-to-day reality.
- John’s CampaignJohn’s Campaign is about making carers of people with dementia welcome on hospital wards and reflects a positive attitude towards the importance of carers and sensitivity to their needs.
- State of Caring 2017This survey undertaken by Carers UK paints a comprehensive picture of caring in 2017 and more than 7,000 people responded, making it the largest State of Caring Survey to date.
- National Audit of Dementia – third reportThe National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016.
- Dementia Friendly Housing CharterThis toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
- How living with dementia could beThis short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
- Better planning for car ownership and well-being in old ageThis briefing paper published by the Housing Learning and Improvement Network seeks to connect the body of knowledge around the significance of car ownership in achieving well-being for older people to those making decisions that may impact on car ownership among older people.
- Helping your loved one with dementia eat wellThis infographic published by Bupa UK offers some pointers for carers and relatives on how to help people with dementia to eat well so that they remain healthy and can continue to remain independent in their own home.
- Fix dementia care – NHS and care homesThis report published by the Alzheimer's Society marks the second phase of a campaign looking at the experiences of people with dementia in a range of health and care settings. It contains the results of a survey of care home managers and the voices of people with dementia, their families and carers.
- Dementia rarely travels alone: living with dementia and other conditionsThis report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.
- Dementia and comorbidities: Ensuring parity of careThis report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.
- Grief, loss and bereavementThis factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.
- Loss and bereavement in people with dementiaThis leaflet published by Alzheimer Scotland addresses the lack of help and information available for formal and informal carers of people with dementia who are bereaved.
- Dementia and homecare: driving quality and innovationThis report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment.
- Active Minds – dementia activity resourcesActive Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
- The Daily SparkleThe Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
- Dementia core skills education and training frameworkThis framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
- Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetThis guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.
- Making your home dementia friendlyThis booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
- Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaThis report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.
- Prevalence of dementia in population groups by protected characteristics: a systematic review of the literatureThis literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion.
- A practical guide to healthy ageingThis guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
- Models of dementia assessment and diagnosis: Indicative cost reviewThis report published by NHS England is designed to provide commissioners and service providers with detailed information about real alternative models of dementia assessment and diagnosis, with a cost breakdown.
- Evaluation of the Bradford Dementia Friendly Communities ProgrammeThis report published by the Joseph Rowntree Foundation identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like.
- Peer Support for People with Dementia: A social return on investment studyThis report published by the Health Innovation Network South London, the Academic Health Science Network for South London, outlines the findings of a study which demonstrated that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment.
- Tailored resource for carers and care providers on supporting people to live well with dementiaThis resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
- On the journey to becoming a dementia friendly organisationThis paper shares the lessons that have been learned through the Joseph Rowntree Foundation’s Dementia without Walls programme which started in June 2012 with a vision of making the UK a better place for people with dementia.
- How can we make our cities dementia friendly?This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York.
- Developing a national user movement of people with dementiaThis report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them.
- Evaluation of the York Dementia Friendly Communities ProgrammeThis report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.
- World Alzheimer Report 2015: The Global Impact of DementiaThe World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.
- Accessible Information StandardThe Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
- A proposal for a UK dementia eye care pathwayThis article published in the journal Optometry in Practice introduces a proposal for a UK dementia eye care pathway and outlines the areas that should be covered within a pathway.
- Living with young onset dementiaThis video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
- Women and Dementia: A global research overviewThis report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective.
- Dementia DiariesDementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
- Women’s experiences of dementiaThe 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.
- Younger people with dementiaThis factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
- Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportThis guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.
- Good to go: A guide to dementia-friendly days outThis handbook published by Care UK aims to support carers relatives and friends who want to enjoy a variety of outings and trips with someone living with dementia.
- Information about Lewy Body DementiaThis handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
- Dementia Peer Support Resource PackThis resource pack, published by the Health Innovation Network, the Academic Health Science Network for South London, aims to promote and encourage more peer support opportunities for people with dementia.
- Creating a dementia friendly workplace: A practical guide for employersThis guide published by the Alzheimer's Society is designed to help employers provide support for staff members with dementia. It may also be a useful resource for people living with, or affested by, dementia in the workplace.
- The Sound Doctor: Getting the best out of life with dementiaThe Sound Doctor is a website full of films developed to help individuals, their relatives and carers to better understand the condition so that they can all take control and get the most out of life.
- Dementia Friendly Communities: New domains and global examplesThis report, published by Alzheimer’s Disease International, highlights the emerging trend to create dementia-friendly communities as a global response against stigma in an effort to form more inclusive societies for people living with dementia.
- Award in Understanding DementiaThe Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
- Duty of Candour: Information for all providersThis document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
- Women and dementia: A marginalised majorityThis report published by Alzheimer's Research UK reveals that dementia has become the leading cause of death among British women and that women are far more likely to end up as carers of those with dementia than men, suffering physical and emotional stress and job losses in the process.
- Caring for CarersThe Caring for Carers Hub developed by the Royal College of General Practitioners is a web based tool that can help primary care staff to more effectively support carers and the people they care for.
- Join Dementia ResearchJoin Dementia Research aims to accelerate the pace of dementia research by allowing people with and without dementia to register their interest in studies, helping researchers find the right participants at the right time.
- Prime Minister’s challenge on dementia 2020The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
- Reading well books on prescription for dementiaThe Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
- No Secrets: guidance on protecting vulnerable adults in careThis guidance document published by the Department of Health sets out a code of practice for the protection of vulnerable adults in care.
- Collaborative Care and Support Planning: an introductionThis animation, commissioned by the Royal College of General Practitioners, sets out the collaborative care and support planning process in a short, easy to understand way.
- Mental Health Act 1983: Code of PracticeThe revised code of practice shows professionals how to carry out their roles and responsibilities under the Mental Health Act 1983, to ensure that all patients receive high quality and safe care.
- Carers AssessmentThis factsheet published by Carers UK outlines the Carers Assessment, a legal entitlement which explores how being a carer affects someone, how much caring they can realistically do, and any help they may need.
- Pain in People with Dementia: A Silent TragedyThis report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.
- 10 Top Tips for supporting carers of people living with cancerThis guidance produced by Macmillan Cancer Support offers some top tips for primary care practitoners to support carers of people living with cancer.
- Commissioning for Carers PrinciplesThis practical tool is part of a suite of products that will help commissioners to deliver what carers say is important to them in ways that have been shown to work effectively and efficiently in practice.
- Carers Evidence Summits ebookNHS Improving Quality has produced an ebook to share the Commitment to Carers achievements over the last year. It includes the findings from the regional Carers Evidence Summits and links to over 50 case studies.
- Mental Capacity Act Code of PracticeThis guidance published by the Office of the Public Guardian explains to people working with or caring for adults who lack capacity to make decisions for themselves the legal responsibilities that must be considered under the Mental Capacity Act 2005.
- Wearing glasses with dementia factsheetThis factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
- Eye examinations for people with dementia factsheetThis factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.
- Dementia Revealed: What primary care needs to knowThis toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.
- Cracks in the pathwayThis report presents the findings of a Care Quality Commission review of the care people living with dementia receive as they moved between care homes and acute hospitals.
- Dementia assessment and referral 2014-15This data collection reports on the number and proportion of patients aged 75 and over admitted as an emergency for more than 72 hours who have been identified as potentially having dementia, who are appropriately assessed and, where appropriate, referred on to specialist services in England.
- Five Year Forward ViewThe Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.
- State of Care 2013/14This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
- Supporting a person with dementiaThis Easy Read factsheet published by the the Alzheimer's Society provides advice for someone with learning disabilities who may have a friend or relative with dementia.
- Improving the delivery of adult diabetes care through integrationThis report published by Diabetes UK explains how diabetes care can be improved to achieve better outcomes for people with diabetes. The challenge for commissioners and healthcare providers locally is to make the system work to support that.
- National Diabetes AuditThe National Diabetes Audit (NDA) is a major national clinical audit, which measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards, in England and Wales.
- World Alzheimer Report 2014, Dementia and Risk ReductionThe World Alzheimer Report 2014, Dementia and Risk Reduction: An analysis of protective and modifiable factors critically examines the evidence for the existence of modifiable risk factors for dementia.
- Planning for your future careThis guidance published by the National Council for Palliative Care explains advance care planning to the public. It outlines the different options available to people when planning for their end of life care.
- Listen, talk, connect: Communicating with people living with dementiaThis handbook published by Care UK is a guide to support carers relatives and friends who want to communicate effectively with someone living with dementia.
- A vision of care fit for the twenty-first centuryThis report published by the Commission on Residential Care offers a vision of housing with care fit for the twenty-first century, not bound by existing definitions but based on the outcomes that people want and value.
- Diabetes sample service specificationThe service specification, published by NHS England, outlines the provision of high quality care for all those with diabetes. It describes all the services needed to provide a complete care pathway for people with diabetes.
- Building on the National Dementia Strategy: Change, progress and prioritiesThis report published by the All Party Parliamentary Party Group on Dementia (APPG) calls for a new long term strategy for dementia to be a worthy successor to the National Dementia Strategy for Dementia in England and the Prime Minister's challenge on dementia.
- Telehealth and Telecare AwareThis online information portal provides a news and information service for people interested in telecare and telehealth.
- Better care for older peopleThis online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
- Marie Curie End of Life Care AtlasThe Marie Curie End of Life Care Atlas is an information portal that gives people who plan and commission end of life care new insight into care provision in their local areas.
- Continence Product AdvisorThe Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.
- Dementia-friendly technology charterThe Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.
- Improving cancer patient experience: A top tips guideThis guide published by Macmillan Cancer Support provides top tips to support professionals make service improvements in response to the National Cancer Survey and deliver improved patient experience.
- Cancer Delivery Support ToolThe Cancer Delivery Support Tool developed by Macmillan Cancer Support is an electronic support tool to assist GPs and Health Professionals to make an early diagnosis of five types of cancer: Oesophageal, Pancreatic, Ovarian, Colorectal and Lung.
- Improving the quality of cancer care in primary careThis toolkit developed by Macmillan Cancer Support aims to support the primary care professionals to develop initiatives and programmes which have a positive impact on the care of people daiagnosed with cancer, their families and carers.
- Cancer information factsheetsThese factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.
- Dementia CarerDementia Carer is a website that provides access to a wide range of video clips featuring carers discussing what helps them cope with issues they encounter in caring for someone with dementia.
- Making your home a better place to live with dementiaThis briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.
- Duty to Care? Supporting and involving unpaid carers of people at the end of lifeThis resource covers the three plenary discussion sessions at the ‘Duty to Care?' conference held in 2013 facilitated by the National Council for Palliative Care. Three detailed scenarios were debated to help identify and explore the practical issues involved in being or supporting a carer.
- Driving and dementiaThis Alzheimer's Society factsheet explains the legal situation around driving and dementia, and gives some tips on stopping driving.
- Care and Support Jargon BusterThe Care and Support Jargon Buster published by Think Local Act Personal is a plain English guide to the most commonly used social care words and phrases and what they mean.
- ACEmobileACEmobile is a mobile-friendly version of the Addenbrooke’s Cognitive Examination (ACE-III), a popular and commonly-used screening tools for dementia.
- Montreal cognitive assessmentThe Montreal Cognitive Assessment (MoCA) is a rapid screening instrument for mild cognitive dysfunction suitable for use in primary care settings.
- Addenbrookes cognitive examination-IIIThe Addenbrooke's Cognitive Examination-III (ACE) is one of the most popular and commonly used cognitive tests used in dementia clinics and in the assessment of other neurological disorders.
- Mini-CogThe Mini-Cog is a brief cognitive function test to screen for cognitive impairment in older adults in the primary care setting.
- General practitioner assessment of cognitionThe General practitioner assessment of cognition (GPCOG) is a reliable, valid and efficient tool to use to screen for dementia in primary care settings for people with carers.
- Six Item Cognitive Impairment TestThe Six Item Cognitive Impairment Test (6CIT) is a brief cognitive function test which takes less than five minutes and is widely used in primary care settings.
- Abbreviated mental test scoreThe Abbreviated mental test score (AMTS) was developed in 1972 for assessing cognition. The test takes around five minutes and is widely used, particularly in UK general hospital settings.
- Focus on dementia researchThe National Institute for Health Research (NIHR) website Focus on Dementia showcases some of the cutting-edge clinical research that could bring new hope to dementia patients and their families.
- Carer’s health checkA Carer's health check should be offered to any newly-registered carers according to local guidelines or the terms of any Local Enhanced Service.
- Initial review following diagnosisThis guidance outlines the steps that a practitioner should consider during an initial review with a patient that has received a formal diagnosis of dementia.
- Blackfriars Consensus on promoting brain healthThe Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
- Referral for a diagnosisThis leaflet produced by the Lewy Body Society highlights the importance of practitioners identifying the main symptoms of Lewy body dementia early to enable referral to a specialist at a memory clinic for correct diagnosis to be made.
- Are you worried about Dementia?This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.
- What causes dementia?Dementia is the result of brain cells being damaged in an ongoing way. This happens as a result of a number of different diseases (sometimes referred to as ‘types’ of dementia). It is not an inevitable part of ageing.
- How common is dementia?According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
- What is dementia?This resource will help practitioners to understand that dementia is more than just difficulties with memory. Dementia is not a single disease but a term used to describe a group of symptoms.
- Be head strongThis guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.
- AT DementiaAT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.
- Choosing your hospitalMost patients can choose which hospital they are seen in according to what matters most to them, whether it's location, waiting times, reputation, clinical performance, visiting policies, parking facilities or other patients' comments.
- Diabetes care planning reviewPractitioners should provide an annual care planning review to all people with diabetes to ensure that each patient gets the right support for managing their diabetes. This short film produced by Diabetes UK aims to help patients to understand what care planning is, and how they can get more involved in their diabetes care.
- Deprivation of Liberty Safeguards (DoLS)This factsheet published by the Alzheimer's Society explains the Deprivation of Liberty Safeguards (DoLS), which are part of the Mental Capacity Act 2005. It also outlines the process for getting authorisation for a deprivation of liberty and how to get it reviewed.
- Advance decisionsAdvance Directives (also referred to as advance decisions to refuse treatment, ADRTs, or living wills) may be drawn up by any person with capacity to do so who is over the age of 18, to determine what treatment they might receive in the event of them losing capacity to make decisions under the Mental Capacity Act 2005.
- Mental Capacity Act 2005The Mental Capacity Act 2005 came into force in 2007 and affects all those working in health and social care involved in caring for people over the age of 16 who are unable to make some or all decisions for themselves.
- The dementia guideThis guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
- Can dementia be prevented?These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.
- Life After Death: Six steps to improve support in bereavementThis briefing paper published by the National Council for Palliative Care identifies six steps to address bereavement as a major public policy issue.
- Am I at risk of developing dementia?This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.
- The Care Bill: factsheetsThese factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
- Putting dementia on the mapPutting dementia on the map published by the Department of Health draws on data and information about dementia health and care, dementia friendly communities and research.
- Dementia: A state of the nation report on dementia care and support in EnglandThis report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
- Virtual Hospital modelling toolThe Virtual Hospital modelling tool, developed by the Dementia Services Development Centre, aims to show good design can help to make an acute hospital setting dementia-friendly.
- Carers services guide – Setting up support services for carersThis guide published by Help the Hospices provides a framework for organisations planning to set up support services for carers of people with life-limiting and terminal illnesses.
- Thinking Ahead: a planning guide for familiesThis guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.
- Diabetes care pathwayThis NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.
- Improving Dementia Education and Awareness (IDEA)This online resource managed by the University of Nottingham is aimed at improving the care and quality of life for people with dementia.
- Peer support networks and dementia advisers: evaluationThis report, published by the Department of Health, provides the findings of the Healthbridge evaluation into the role that dementia advisers and peer support networks can provide in post diagnostic support for people with dementia and their carers.
- Enhanced service for people with dementia in primary careThis short paper by Alistair Burns and Laurence Buckman summarises a multi-disciplinary group discussion on how the Enhanced Service might be optimally used to increase the numbers of people receiving a diagnosis and accessing post diagnostic support.
- ICD deactivation at the end of life: Principles and practiceDesigned for any health professionals involved in caring for patients with an Implantable Cardioverter Defibrillator (ICD), this document discusses issues relating to ICDs in the management of advanced heart disease.
- Diabetes Risk ScoreThe Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.
- Journey of Caring: An analysis of long-term care for dementiaThis report published by Alzheimer’s Disease International highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.
- Guidance on the use of neuro-imaging in the assessment of dementia in Primary CareThis guidance for Clinical Commissioning Groups and Health and Wellbeing Boards covers the role of neuro-imaging in the assessment and diagnosis of dementia in primary care.
- The Triangle of Care – carers included: A guide to best practice for dementia careThe Triangle of Care is a model for dementia care that supports a partnership approach between the person with dementia, the staff member and carer. It is designed to ensure that carers are appropriately included and involved in the care of people with dementia, particularly in hospital settings.
- A road less rocky – supporting people with dementiaThis report published by the Carers Trust highlights that carers of people with dementia are not getting the support and advice they often desperately need.
- Building dementia-friendly communities: A priority for everyoneThis report, published by the Alzheimer's Society, explores evidence from people with dementia about their experiences of living in their community and the ten key things they would like to see in a dementia-friendly community.
- Dementia adviser service: evaluationThis report published by the Alzheimer's Society presents the findings of an evaluation of the Pathfinder Dementia Adviser services from the perspective of service users.
- Dementia e-learning sessionsAn interactive e-learning resource to support the training of all health and social care staff in recognising, assessing, and managing dementia, and providing high quality dementia care.
- Assistive technology – devices to help with everyday livingThis factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.
- Frontotemporal dementiaThis article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
- National Audit of Dementia in General HospitalsThe second report of the National Audit of Dementia in General Hospitals identifies continuing problems in the quality of care received by people with dementia in hospitals in England and Wales.
- Dementia does not discriminate – The experiences of black, Asian and minority ethnic communitiesThis report, produced by the All Party Parliamentary Group (APPG) on Dementia, looks at the experiences of black, Asian and minority ethnic (BAME) communities in dealing with the condition.
- Cataracts and dementia factsheetThe information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.
- Guidance for Learning Disability Partnership BoardsThis booklet offers guidance to Learning Disability Partnership Boards to help them ensure that carers of people with learning disabilities, and carers with learning disabilities are supported and involved in local service developments which affect their lives, and the lives of the people they care for.
- What is dementia with Lewy bodies (DLB)?This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for Dementia with Lewy bodies (DLB).
- Dementia and aggressive behaviourThis factsheet produced by the Alzheimer's Society aims to aid understanding about what may cause this type of behaviour and offers some ways to deal with it.
- Participation in dementia researchThis short film aims to encourage more patients and carers to take part in ground-breaking research into dementia and other neurodegenerative diseases.
- Dementia coding clean-up exerciseThis exercise devised by Dr Paul Russell aims to support GPs to identify problems in coding, which are contributing to low rates of dementia diagnosis on practice registers.
- NHS Continuing Healthcare e-learning toolThis e-learning tool developed by NHS England and the Association of Directors of Adult Social Services will support all practitioners to improve assessment and decision making around NHS Continuing Healthcare.
- Dementia: Finding housing solutionsThis report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
- Dementia Prevalence CalculatorThe Dementia Prevalence Calculator presents an opportunity for all health communities to gain a better understanding of their local estimated prevalence of dementia in the community, and among people living in local care homes.
- Dementia 2013: The hidden voice of lonelinessThis report, published Alzheimer’s Society, reveals that nearly two thirds (62%) of more than 250,000 people with dementia who live on their own are lonely. This compares to just 24 per cent of over 55 year olds.
- CMG48: Support for commissioning of dementia careThis guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
- QS30: Supporting people to live well with dementiaThis quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
- Cardiovascular Disease Outcomes StrategyThis outcomes strategy published by the Department of Health identifies ten key actions for local authority and NHS commissioners and providers to deliver improvements in patient outcomes.
- Making a Difference in Dementia: Nursing StrategyThis nursing vision and strategy for dementia care, published by the Department of Health, makes clear that every nurse can make a difference to the care of people with dementia.
- Best practice for commissioning diabetes servicesThis guidance published by Diabetes UK aims to help commissioners understand the nature of integrated diabetes care, why it is so important and to provide a signpost to other documents that will be of help in the commissioning process.
- Helping you to assess cognition: A practical toolkit for cliniciansThis toolkit published by the Alzheimer's Society provides guidance to clinicians about what cognitive function tests are available and how they may be used in clinical practice.
- RCGP Commissioning Guidance in End of Life CareThis guidance offers a logical six-step framework and overview to support GP commissioners to deliver practical improvements in end of life care, aligned with national policy and quality standards.
- Low expectations: attitudes on choice, care and community for people with dementia in care homesThis report published by the Alzheimer’s Society stresses the need to lift expectations and to strengthen existing minimum standards to boost quality of life for people with dementia in care homes.
- Support and care for people living with dementia from minority communitiesThis report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
- Dementia FriendsDementia Friends is an Alzheimer’s Society initiative that aims to give a million people a better understanding of dementia by 2015.
- Handy guide to selecting a care homeThis guide published by the Alzheimer’s Society is designed to be taken into care homes by people with dementia and their families and provides an independent and objective guide to what makes good quality care.
- Spirituality and ageing: implications for the care and support of older peopleThis briefing paper published the Institute for Research and Innovation in Social Services explores why our ageing population requires person-centred care and developmental support in order to maximise its chances of ageing well.
- Dementia diagnosis resource packThis resource pack produced by Dementia Partnerships sets out key steps for Commissioners and General Practices to improve the diagnosis of dementia, and diagnosis pathways.
- Implementing local diabetes networksImplementing Local Diabetes Networks, published by Diabetes UK, is for commissioners to explain the importance and composition of a local diabetes network.
- Supporting people with dementia at homeThis training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
- How would I know? What can I do?This guide, developed by the National Council for Palliative Care (NCPC), provides advice for carers and those who work with people with dementia on how to help with pain and distress in people with the condition.
- Dementia READ codesThis knowledge summary produced by Dementia Partnerships defines a standard set of READ codes for the diagnosis of dementia to be used by general practices and memory assessment services.
- Delivering major improvements in dementia care and research by 2015: A report of progressThis report by the three Champion Groups leading the Prime Minister's challenge on dementia provides an update on progress since the launch of the Challenge in March 2012.
- Hospital 2 Home resource packThis resource is designed to make it easier for health and social care professionals involved in hospital discharge to support older patients in returning home safely after a hospital stay and reduce the risk of readmission to hospital.
- Find me good careThis website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.
- Sight, perception and hallucinations in dementiaThis Alzheimer's Society factsheet considers some specific difficulties that people with dementia can have with sight, perception and hallucinations, and suggests ways to support them.
- Advance care planning toolkitThis toolkit developed by the National End of Life Care Programme (NEoLCP) aims to help care providers approach the advance care planning process with confidence and knowledge.
- Commissioning person-centred end of life careThis toolkit published by the National End of Life Care Programme identifies the main elements involved in the commissioning process, explains the commissioning cycle in practical terms and offers a four-stage approach across all sectors.
- The Right Care: creating dementia friendly hospitalsThe Right Care is a call to action to transform the acute hospital experience for people with dementia and their carers.
- Taking medication ‘just like that’This campaign led by the British Heart Foundation (BHF) aimed to remind people how vital heart medicines and raise awareness that millions of people could be putting their lives in danger by not taking their medicines as prescribed.
- Ten tips for communicating with a person with dementiaThese top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.
- The Right Prescription: resource packThis resource pack will support pharmacists, who play a crucial role in medicines optimisation, to have critical conversations about the prescription of antipsychotics in dementia and reduce inappropriate prescribing.
- Matters of Life and Death: Helping people to live well until they dieThis guidance aims to support practitioners to implement the End of Life Care Patient Charter, jointly produced by the Royal College of General Practitioners and the Royal College of Nursing.
- National dementia and antipsychotic prescribing auditThe National dementia and antipsychotic prescribing audit aims to gather information from primary care to establish a national picture of prescribing antipsychotic medication in people with dementia.
- Unlocking Diagnosis: The key to improving the lives of people with dementiaThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
- Moving and walking aboutThis Alzheimer's Society factsheet explains some of the reasons why a person with dementia may walk about and looks at what you can do to help.
- New models of care for dementiaThis report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
- Dementia commissioning for quality and innovationDementia commissioning for quality and innovation (CQUIN) aims to help identify patients with dementia and other causes of cognitive impairment, alongside their other medical conditions and to prompt appropriate referral and follow up after they leave hospital.
- Care of people with dementia in primary careThis factsheet published by the Royal College of General Practitioners provides GPs with guidance on the care of people with dementia in primary care.
- Guidance and standards for diagnosing dementiaThis guidance sets out the process and associated standards for making a diagnosis of dementia in primary health care services, and by specialist memory assessment services.
- What is Alzheimer’s disease?Alzheimer's disease is the most common cause of dementia, affecting around 496,000 people in the UK. This Alzheimer's Society factsheet outlines the symptoms and risk factors for Alzheimer's disease, and describes what treatments are currently available.
- The later stages of dementiaDuring the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care.
- Moving into a care home: advice for lesbian, gay and bisexual peopleThis factsheet published by the Alzheimers Society provides some advice for lesbian, gay and bisexual people on choosing a suitable care home and suggests things to think about when the person moves in.
- Drugs used to relieve behavioural and psychological symptoms in dementiaThis factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
- What is vascular dementia?Vascular dementia is the second most common form of dementia after Alzheimer's disease. This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for vascular dementia.
- Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementiaThis guide to personalisation and dementia has been written for, and with input from, people living with dementia, their families and friends, and the practitioners who support them.
- Case for change – Communities for people living with dementiaThis document explains the evidence that has been used in designing the service to support people with dementia, whether living at home or in care homes, as well as dementia-specific elements of other Communities.
- An evaluation of dementia support worker rolesThis report presents an evaluation of existing models of community-based support for people with dementia, their families and carers.
- NICE quality standard QS13: End of life care for adultsThis quality standard published by the National Clinical Institute for Health and Clinical Excellence (NICE) defines clinical best practice in provding end of life care for adults.
- Making involvement countThe Making involvement count resource pack is made up 18 cards each aimed at giving specific information, advice and top tips to support people with dementia to get involved in activities whilst recognising their current abilities.
- Caring, compassionate, skilled – transforming the dementia workforceThis guidance will support commissioners to better understand workforce planning and development issues that may impact staff working with people with dementia and their carers and families.
- Gold Standard Framework Prognostic Indicator GuidanceThis guidance aims to help GPs, clinicians and other professionals in earlier identification of those adult patients nearing the end of their life who may need additional support.
- National Dementia Vision for WalesThe National Dementia Vision for Wales sets the Welsh governmnet's vision to strengthen communities, creating a key resource for people affected by dementia at local and national level. The objective being that over time, building on local improvements from the grass roots up, a network of local dementia supportive communities will create a national dementia supportive community.
- Improving the care of people with dementia in general hospitalsDignity in dementia; improving care in general hospital settings, a Royal College of Nursing led project, has launched tools to improve the care of people with dementia in general hospitals.
- Committed to carers: Supporting carers of people at the end of lifeThis report published by the Marie Curie Cancer Care draws on the direct experiences of people caring for someone at the end of life and on Marie Curie Cancer Care’s years of expertise of caring for carers.
- Request for proposal: action plan to improve care for people with dementia in hospitalThis is a request for a proposal to improve care for people with dementia in hospital.
- Service specification for dementia: better care at home, and in care homesThis specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.
- Service specification for dementia: mental health liaison service for general and community hospitalsThis specification has been designed to assist commissioners in the delivery of a service to support general and community hospitals to deliver better care to people with dementia.
- Template action plan to improve care for people with dementia in the communityThis is a template action plan for use by local authorities and commissioning consortia working together under the auspices of Health and Well-being Boards to improve care for those people with dementia who live in their own homes or in some other residential setting.
- Optimising treatment and care for behavioural and psychological symptoms of dementiaThis best practice guide has been developed in consultation with an advisory group of leading clinicians specialising in dementia.
- Case for change – mental health liaison service for dementia care in hospitalsThis document explains the evidence that has been used to identify eligible patients and for the design of mental health liaison services in general and community hospitals and its core components.
- Reducing the use of antipsychotic drugsThis leaflet is for people with dementia and their carers who want to know more about behavioural and psychological symptoms of dementia and how they can be prevented and treated.
- The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
- Commissioning End of Life Care: Act & EarlyThis guidance published by the National Council for Palliative Care aims to help healthcare commissioners to prioritise early action on end of life care to ensure people’s choices are met and to avoid unnecessary emergency hospital admissions.
- Dementia stakeholder groups – action plansThese plans outline actions for improvement across four key priority areas: improving service provision, early diagnosis, access to information and training.
- Understanding out of hospital dementia careThis report, published by Healthcare at Home, explores home-based models of care that will keep people with dementia out of hospital.
- Dementia awareness resource packThis pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
- Support, Stay, Save: care and support of people with dementia in their own homesThis report provides evidence from over 2,000 carers, people with dementia and home care workers on the aspirations, experiences and outcomes of providing dementia care in the community in England, Wales and Northern Ireland.
- Echocardiography guidelines for valve quantificationThis poster contains guidelines for echocardiography valve quantification developed by the Education Committee of the British Society of Echocardiography.
- Windows of opportunity for prevention and early intervention in dementia toolkitThis online resource, produced by the Social Care Institute for Excellence, will help commissioners and providers to ensure that any help or support offered at any stage in a person’s journey with dementia is offered in a timely way.
- Diabetes in adults quality standardThis NICE quality standard defines clinical best practice for diabetes care. It provides specific, concise quality statements, measures and audience descriptors to provide patients and the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.
- NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careThis guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
- Recognised, valued and supported: Next steps for the Carers StrategyThis strategy identifies the actions that the Government will take between 2011-15 to support its priorities to ensure the best possible outcomes for carers and those they support.
- Understanding and respecting the person with dementiaThis factsheet produced by the Alzheimer’s Society explores ways that carers can help people living with dementia to feel valued and good about themselves.
- Unusual behaviourThis factsheet produced by the Alzheimer’s Society outlines some typical sorts of unusual behaviour in people with dementia and explains some common causes.
- Befriending works: building resilience in local communitiesThis report published by the Mentoring and Befriending Foundation provides an overview of how befriending can contribute to improving the health and well-being outcomes of vulnerable people at risk of social isolation or exclusion from mainstream society.
- Treatment and care towards the end of life: good practice in decision makingThis guidance provides a framework for good practice aimed at doctors when providing treatment and care for patients who are reaching the end of their lives.
- What about me? Remembering the needs of carersThis short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.
- End of life care for people with dementia commissioning and benchmarking toolThe commissioning and benchmarking tool helps you to assess local service requirements using the indicative benchmark as a starting point. With knowledge of your local population and its demographic, you can amend the benchmark to better reflect your local circumstances.
- End of life care for people with dementia commissioning guideThis commissioning guide provides support for the local implementation of NICE clinical guidelines through commissioning, and is a resource to help statutory and voluntary health and social care professionals in England to commission integrated end of life care (EOLC) services for people with dementia.
- A Misspent Opportunity? Inquiry into the funding of the National Dementia StrategyThis report published by the All-Party Parliamentary Group on Dementia (APPG) examines initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England.
- Diabetes and your heartThis booklet is for people who have diabetes, and for their families and friends. It may also be useful if you don’t have diabetes but you have been told you may develop it in the future.
- This is me'This is me' is a leaflet produced by the Alzheimer's Society to help hospital staff better understand the needs of people with dementia.
- Dementia: ethical issuesThis report published by the Nuffield Council on Bioethics presents an ethical framework to help practitioners who face dilemmas in connection with the everyday care of someone with dementia.
- Commissioning domiciliary care for people with dementia and their carersThe purpose of this paper is to assist commissioners in ensuring that homecare for people with dementia is appropriate to their needs and/or the needs of their carers.
- Counting the cost: caring for people with dementia on hospital wardsThis report published by the Alzheimer's Society reveals unacceptable variations in the quality of care for people with dementia in hospital and puts forward recommendations to improve dementia care, shorten the length of stay and reduce costs.
- Supporting Family Carers of People with Learning DisabilitiesThis resource pack produced by the Foundation for People with Learning Disabilities and the Sharing Caring Project at Sheffield Mencap supports practitioners to develop and provide the best information and support to family carers of people with learning disabilities.
- Dementia patient decision aidThis decision aid is intended to assist health professionals considering prescribing acetylcholinesterase inhibitor medication (donepezil, galantamine or rivastigmine) for patients to improve symptoms of dementia and reduce the rate of decline in mental function.
- Prepared to care – Challenging the dementia skills gapThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
- Making decisions: who decides when you can’t?This guidance published by the Office of the Public Guardian explains how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves. It provides advice to help people to plan ahead in case they are unable to make and understand decisions in the future.
- Making decisions: a guide for people who work in health and social careThis guidance published by the Office of the Public Guardian explains to health and social care workers how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves.
- See me, not just the dementiaThis report looks at the experiences of people with dementia living in care homes in England, with a particular focus on whether their care offers dignity and respect.
- Always a last resort: Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homesThis report published by the All-Party Parliamentary Group on Dementia (APPG) examines the problem of the over prescription of antipsychotic drugs to people with dementia living in care homes and proposes workables solutions.
- Improving services and support for people with dementiaThis report published by the National Audit Office presents findings from a study into the health and social care services available for people with dementia and their unpaid carers in England and whether they are providing effective and good quality support; and the scope for better use of resources against a background of rising demand.
- Fulfilled Lives, Supportive Communities: A Strategy for Social Services in Wales over the next decadeThis strategy describes how modern accessible and responsive social services, delivered flexibly, consistently and sustainably across organisational boundaries will contribute to a better Wales and to improving the lives of its citizens.
- Dementia UKThis report into the prevalence and cost of dementia shows that as the UK's population ages the number of people with dementia will grow substantially. It also shows that dementia costs the UK £17 billion a year.
- Services for younger people with Alzheimer’s disease and other dementiasThis briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
- Caregiver Strain IndexThe Caregiver Strain Index (CSI) is a tool that can be used to quickly identify families with potential caregiving concerns.
Latest groups
- Admiral Nurses – South Wales Admiral Nurse Service LegionAdmiral Nurses – South Wales Admiral Nurse Service Legion works with Dementia UK to provide Admiral Nurse support – a service that supports their beneficiaries, which can be the carer or the person living with dementia, who have served in the UK Armed Forces. The focus of the ...
- Free Legal Advice and SupportQualia Law CIC provides free legal advice and support for people living with dementia. We also provide advice to families, carers or professionals in the social care and third sector. Our solicitors are specialists in the areas of: Mental Capacity, Financial Safeguarding, the Court of Protection and Lasting Powers of Attorney.
- Sporting Memories ClubLove talking sport? We welcome you to our friendly Sporting Memories Club at Rodney Parade. Every Thursday 10am to 12pm. Come along, listen and share sporting memories with other older sports fans. Free refreshments.
- Goldies Cymru – Singing and Activity GroupsPutting smiles on hundreds of faces through our daytime singing and activity sessions. Many new sessions are specifically for People living with Dementia.
- Lunch Club – CwmbranThis is one of six community hubs in Torfaen, run as part of Age Concern Torfaen's Friends For Life befriending project. These are lunch clubs that also offer activities, such as card and board games, IT classes, arts & crafts, singalongs, knitting groups, pamper days, reading groups, guest speakers, cake decorating and summer trips.
- Young dementia drop in serviceWiddershins Centre at Age Connects Torfaen provides a ceramics café, activity programme and drop in service for people aged between 40 and 65 years, with either a memory loss or young onset dementia in a relaxed environment. We meet every Monday between 1pm-3pm and Wednesday between 11-2pm
- “Zest for Life” – Young Onset Dementia ServiceWe are a supportive group for younger individuals. Suitable for those living with young onset dementia or cognitive impairment. We welcome individuals and carers across Gwent. Weekly Friday drop-in group
- Monmouthshire Tea DanceThe Monmouth Intergenerational Tea Dance intends to bring together a wide range of people from the community, mostly older people including people with dementia and frailty plus their carers. A qualified dance instructor leads an hour of dancing, followed by refreshments and socialising.
- Art Group Torfaen Younger PeopleThis is for People with Dementia diagnosed under 65 and their Carers, family and Friends Residents of Torfaen Available weekly on Thursdays 10 am till 12 pm Our skill or interest based activity group can give you the opportunity to take part in a fun, ...
- Activity GroupOur informal activity groups give you or someone you know that is affected by dementia the opportunity to take part in a variety of activities, which focus on socialising and getting to know the others in the group. This group is for people with Dementia, ...
- Young onset dementia groupThe Young onset dementia group provides a relaxed and friendly environment for people with a cognitive impairment or young early onset dementia to socialise and take part in activities. We meet every Monday 12.15-3.15pm and Wednesday 10.30-2.30pm
- Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.
- Torfaen Carers CentreThe centre offers support to carers within the community and also runs specific groups
- Widdershins Lunch ClubWiddershins Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.
- Torfaen social group for younger people living with dementiaTorfaen social group gives younger people living with dementia the opportunity to take part in structured activities.
- Torfaen respite care serviceCrossroads Care South East Wales' respite care service enables carers to take a break from their caring role.
- Torfaen personal care serviceCrossroads Care South East Wales provide trained support workers to help people to maintain their physical psychological and emotional well-being.
- Torfaen Nordic walking groupNordic Walking is an enhanced walking experience that uses poles to work your upper body as well as your legs. Our qualified instructor carefully plans the route taking in the beautiful scenery that Torfaen has to offer.
- Torfaen men’s clubAge Connects Torfaen run a dedicated men only group who meet the second Wednesday of the month. The group meet for a home cooked meal and then take part in a range of activities.
- Torfaen medication prompting serviceCrossroads Care South East Wales - Medication Prompting provide trained carer support workers to help people with dementia to take their medication.
- Torfaen information and advice serviceAge Connects Torfaen provides a free independent and confidential information and advice service to older people in the area.
- Torfaen friendship groupTorfaen friendship group offers people the opportunity to meet up with friends or meet new people with an morning of chat refreshments and activities.
- Torfaen food and drink serviceCrossroads Care South East Wales provide trained carer support workers to help with the preparation re-heating serving and feeding of food.
- Torfaen floating support serviceAge Connects Torfaen provide a free floating support service which offers a wide ranging support to older people to help them remain independent.
- Torfaen emergency response serviceTorfaen emergency response service provides 24 hour support to carers when an emergency occurs involving the person that they care for.
- Torfaen dementia support workersTorfaen dementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future.
- Torfaen dementia day serviceAge Connects Torfaen provide a day specialist dementia day service offering support and providing activities and care in a stimulating environment.
- Torfaen dementia day careTorfaen dementia day care and support service provides care and support in a safe and comfortable group setting.
- Torfaen Community TransportTorfaen Community Transport provides door-to-door transport from people's homes in Torfaen to destinations of their choice.
- Torfaen care and repairTorfaen care and repair provide a free comprehensive home improvement and advisory service to older and disabled people living in Torfaen to help them remain in their own homes in greater comfort warmth and security.
- Torfaen befriending serviceTorfaen befriending service offers companionship and support and helps people carry on doing the things they enjoy or to try new activities.
- Torfaen art groupAlzheimer's Society in Torfaen run a weekly art group for people living with dementia.
- Torfaen advocacy serviceTorfaen advocacy service supports people to understand their rights and express their views. Advocates use their expertise to empower people to make informed choices and decisions.
- Pontnewynydd Lunch ClubPontnewynydd Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.
- New Inn Lunch ClubNew Inn Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.
- Llanyravon dementia cafeThe Llanyravon dementia cafe provides information about living with dementia and other services available locally in an informal and comfortable environment.
- Llanyravon carers support groupLlanyravon carers support group gives people the opportunity to meet with others who understand some of what they are going through.
- Ladder to the MoonLadder to the Moon provides workforce and service development that enables health and care organisations to develop active, creative, vibrant care services. It uses approaches that incorporate creativity and the arts, and involve staff, older people living with dementia and other long-term conditions, and the wider community.
- ThriveThrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulation
- SewingAge Connects Torfaen run a weekly sewing class suitable for all abilities.
- Information and Advice (Widdershins Centre)Age Connects Torfaen provides a free independent and confidential Information and Advice service to older people in the area.
- Help at HomeAge Connects Torfaen Help at Home service can offer help around the home such as cleaning, shopping and accompanying people to appointments.
- Griffithstown dementia cafeThe Griffithstown dementia cafe provides information about living with dementia and other services available locally in an informal and comfortable environment
- Griffithstown carers support groupGriffithstown carers support group gives people the opportunity to meet with others who understand some of what they are going through.
- Extend ExerciseExtend Exercise provides gentle exercise to music for older people and for anyone of any age with a disability. The aim of the class is to promote health increase mobility and independence improve strength co-ordination and balance and to counteract loneliness and isolation.
- Croesyceiliog Lunch ClubCroesyceiliog Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.
- Community support serviceThe community support service provided by the Alzheimer's Society Torfaen is for people with dementia who need support to carry on doing the things they enjoy or to try new activities.
- Check CallsCrossroads Care South East Wales can provide check calls in order to ensure that any person living with dementia is safe has supplies and has contact with someone during the day.
- Arts and crafts groupAge Connects Torfaen run a weekly arts and crafts class suitable for people of all abilities.
- Abersychan Lunch ClubAbersychan Lunch Club is one of six community hubs in Torfaen run as part of Age Connects Torfaen's Friends For Life befriending project.
- RevitaliseRevitalise is a national charity providing short breaks and holidays (respite care) for disabled people and carers. We also offer inspirational opportunities for volunteers through one of the largest, most diverse volunteer programmes in the UK.
- The ExtraCare Charitable TrustThe ExtraCare Charitable Trust ia a not for profit developer and operator of ExtraCare Villages and Housing schemes which has retirement villages and housing schemes across the Midlands and North. ExtraCare's award-winning Enriched Opportunities Programme® (EOP) supports residents with dementia and dementia-related conditions.
- Dementia AdventureDementia Adventure is a charity dedicated to bringing the benefits of nature based activities and adventures into the lives of more people living with dementia.
- Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers.
- Alzheimer’s Society WalesAlzheimer’s Society is the leading care and research charity for people with dementia their families and carers. The Alzheimer's Society Wales provides a wide range of services to support people living with dementia and their carers.
- Aneurin Bevan University Health BoardAneurin Bevan University Health Board covers the areas of Blaenau Gwent, Caerphilly, Monmouthshire, Newport, Torfaen and South Powys. It serves an estimated population of over 639,000, approximately 21% of the total Welsh population.
- The Reading AgencyThe Reading Agency is a charity working to inspire more people to read more, encourage them to share their enjoyment of reading and celebrate the difference that reading makes to all our lives.
- All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.
- Dementia Engagement and Empowerment Project (DEEP)The Dementia Engagement and Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia.
- Innovations in DementiaInnovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.
- The Reader OrganisationThe Reader Organisation is a charitable social enterprise working to connect people with literature through shared reading. The older people and dementia work programme uses shared reading to improve quality of life and care for people living with dementia and their carers.
- Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.
- Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.
- YoungDementia UKYoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.
- The Imperial Memory UnitThe Imperial Memory Unit within Charing Cross Hospital offers patients access to the latest treatments for memory disorders through participation in clinical trials and research.
- Sporting Memories NetworkThe Sporting Memories Network, also known as Replay, is a national charity which promotes the use of sporting memories to improve the wellbeing of older people and to tackle dementia, depression and social isolation.
- Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.
- British Institute of Learning DisabilitiesBritish Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.
- British Heart FoundationThe British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.
- Diabetes UKDiabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.
- Self Management UKSelf Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.
- Dementia Research CentreThe Dementia Research Centre, based at the National Hospital for Neurology and Neurosurgery, is one of the UK's leading centres for clinical research into dementia.
- Bradford Dementia GroupBradford Dementia Group is a multi-disciplinary, multi-professional group committed to making a difference to policy and practice in dementia care, through excellence in research, education and training.
- Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.
- Disabled Living FoundationThe Disabled Living Foundation (DLF) is a national charity providing impartial advice, information and training on independent living.
- National Council for Palliative CareThe National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.
- Gold Standards Framework CentreThe National Gold Standards Framework (GSF) Centre in End of Life Care is the national training and coordinating centre for all GSF programmes, enabling generalist frontline staff to provide a gold standard of care for people nearing the end of life.
- Employers for CarersEmployers for Carers provides practical, ‘hands-on’, help to employers to support carers in their workforce.
- Short Breaks NetworkThe Short Breaks Network is the national co-ordinating body for the short break sector in the UK, providing short breaks for disabled children, young people and their families.
- Bladder and Bowel FoundationThe Bladder and Bowel Foundation is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals.
- Foundation for People with Learning DisabilitiesThe Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.
- The National Valuing Families ForumThe National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.
- Marie Curie Cancer CareMarie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.
- Macmillan Cancer SupportMacmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.
- Foundation for Assistive TechnologyThe Foundation for Assistive Technology aims to develop a thriving market in equipment that promotes independent living and meets the real needs of disabled and older people.
- Assist UKAssist UK leads a UK wide network of locally-situated Disabled Living Centres. Most centres include a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment to support them to live independently.
- Carers DirectCarers Direct offer a helpline for carers that need help with their caring role and want to talk to someone about what options are available to them.
- Carers UKCarers UK is a national membership charity for carers, that is both a support network and a movement for change.
- Carers TrustCarers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.
- The Disabled Parents NetworkThe Disabled Parents Network is a National network of Disabled Parents, helping each other and bringing about change for disabled people who are parents or who hope to become parents, their families, friends and supporters.
- Driver and Vehicle Licensing Agency (DVLA)The Driver and Vehicle Licensing Agency (DVLA) maintain registers of drivers and vehicles in Great Britain. It is important that practitioners encourage their patients with dementia to inform the DVLA of their diagnosis.
- The Dementia Training CentreThe Dementia Training Centre offers a range of courses from face to face training programmes, tailored to the meet the needs of your organisation, free e-learning packages designed by experts, to a Master’s degree offering specialist dementia training.
- Parkinson’s UKParkinsonism is a feature associated with some dementias, particularly Parkinson's dementia and dementia with Lewy bodies. Parkinson's UK offers support for patients and carers, including excellent advice on coping with daily activities.
- Lewy Body SocietyThe Lewy Body Society is a charity which aims to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.
- Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias.
- Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.