Later stages
During the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care.
Knowing what to expect can help everyone to prepare. It can enable the person with dementia to think about the kind of treatment and care they might want, and allows them to write an informed Advance Decision before they reach this stage so they can have input into how they will be cared for.
Other areas for planning ahead include arrangements for decisions about property and legal affairs. Knowing what to expect also allows carers and family to think about these aspects too.
Resources
- Dementia: Reduce your risk in 6 stepsApril 23 2018This document outlines 6 steps that people can take to improve both physical and mental health and significantly reduce the risk of developing dementia.
- Women and Dementia: A global research overviewJune 5 2015This report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective.
- Aneurin Day CareApril 19 2018Aneurin Day care Centre Newport is a company founded on love. We provide high quality, person-centred care and support to older adults specialising in dementia, living in the community. In addition to providing a place of safety for older people who need day care, we ...
- Caring for someone with dementiaNovember 20 2019Caring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
- What is dementia?April 2 2014This resource will help practitioners to understand that dementia is more than just difficulties with memory. Dementia is not a single disease but a term used to describe a group of symptoms.
- Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
- Award in Understanding DementiaMarch 18 2015The Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
- How common is dementia?April 6 2014According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
- Dementia Friends – bookcase analogyOctober 16 2018In this film Natalie Rodriguez, Dementia Friends Champion, uses a bookcase analogy to describe how dementia may affect a person. This simple explanation, orginally devised by Dr Gemma Jones, can be helpful for Dementia Friends Champions to explain dementia to others.
- What is dementia with Lewy bodies (DLB)?June 7 2013This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for Dementia with Lewy bodies (DLB).
- The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015The Sound Doctor is a website full of films developed to help individuals, their relatives and carers to better understand the condition so that they can all take control and get the most out of life.
- Blackfriars Consensus on promoting brain healthMay 3 2014The Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
- What is Alzheimer’s disease?March 7 2012Alzheimer's disease is the most common cause of dementia, affecting around 496,000 people in the UK. This Alzheimer's Society factsheet outlines the symptoms and risk factors for Alzheimer's disease, and describes what treatments are currently available.
- What is vascular dementia?December 7 2011Vascular dementia is the second most common form of dementia after Alzheimer's disease. This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for vascular dementia.
- Information about Lewy Body DementiaApril 27 2015This handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
- The later stages of dementiaMarch 7 2012During the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care.
- Women’s experiences of dementiaJune 1 2015The 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.
- Women and dementia: A marginalised majorityMarch 8 2015This report published by Alzheimer's Research UK reveals that dementia has become the leading cause of death among British women and that women are far more likely to end up as carers of those with dementia than men, suffering physical and emotional stress and job losses in the process.
- Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
- Living with early-stage dementiaNovember 20 2019Living with early-stage dementia is a comprehensive guide published by Age UK, also known as Age Cymru in Wales.
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Groups
- Alzheimer’s Society WalesAlzheimer’s Society is the leading care and research charity for people with dementia their families
and carers. The Alzheimer's Society Wales provides a wide range of services to support people living with dementia and their carers.S4C, Parc Ty Glas, Llanishen, Cardiff CF14 5DU, UK0333 150 3456sdareaoffice-southwales@alzheimers.org.ukhttps://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200139
- Newport dementia support workersNewport dementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.Part Ty Derwen, Church Road, Newport, NP19 7EJ01495 768744
- Aneurin Bevan University Health BoardAneurin Bevan University Health Board covers the areas of Blaenau Gwent, Caerphilly, Monmouthshire, Newport, Torfaen and South Powys. It serves an estimated population of over 639,000, approximately 21% of the total Welsh population.St Cadoc's Hospital, Lodge Road, Caerleon, Newport, Wales, NP18 3XQ01873 732732abhb.enquiries@wales.nhs.ukhttps://www.aneurinbevanhb.wales.nhs.uk/
- Innovations in DementiaInnovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.PO Box 616, Exeter, EX1 9JB01392 420076ideas@innovationsindementia.org.ukhttps://www.innovationsindementia.org.uk/
- Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 4160info@dementiauk.orghttps://www.dementiauk.org
- Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 3500enquiries@alzheimers.org.ukhttps://www.alzheimers.org.uk/
- Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.Iris Murdoch Building, University of Stirling, Stirling, FK9 4LA, Scotland01786 467740https://www.dementia.stir.ac.uk
- Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.Warstones Resource Centre, Warstones Drive, Wolverhampton, WV4 4PG0845 257 2250info@dementiapathfinders.orghttps://www.dementiapathfinders.org
- Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias. 3 Riverside, Granta Park, Cambridge, CB21 6AD0300 111 5555enquiries@alzheimersresearchuk.orghttps://www.alzheimersresearchuk.org