DementiaRoadmap Wales

Promoting living well with dementia across Wales

Extra care

Extra care housing can be a good alternative to a move to a residential care or nursing home, enabling people to remain independent.

Extra care schemes provide:

  • self-contained accommodation within a residential complex
  • a personalised package of personal care and domestic help, for example help with shopping, cooking, getting dressed or washing
  • access to 24-hour support
  • some communal living areas and facilities, such as activity rooms, a shared garden, restaurant, library or hairdresser.

Many schemes aim to support people in their own homes until the end of life. Despite the benefits, extra care may not suit everyone. Many people prefer to have their own space, but for some, this can feel isolating and they may prefer a residential setting. As people's support needs increase, extra care can also become an expensive housing option.

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Resources

  • The Daily SparkleFebruary 5 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Active Minds – dementia activity resourcesFebruary 12 2016Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
  • Duty of Candour: Information for all providersMarch 15 2015This document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
  • Pain in People with Dementia: A Silent TragedyJanuary 7 2015This report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
  • A vision of care fit for the twenty-first centurySeptember 3 2014This report published by the Commission on Residential Care offers a vision of housing with care fit for the twenty-first century, not bound by existing definitions but based on the outcomes that people want and value.
  • State of Care 2013/14October 16 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
  • Dementia Friendly Housing CharterMarch 23 2017This toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
  • Preparing for a Social Services Care Needs AssessmentMarch 28 2019Tips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below.  http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment  
  • Social Services Support for DementiaEven if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
  • NHS Continuing Healthcare and NHS-funded Nursing CareNHS Continuing Healthcare  If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
  • Independent Living by MelinNovember 1 2019Melin's Independent Living team manages over 850 properties across Blaenau Gwent, Torfaen, Newport, South Powys and Monmouthshire. These are designed for single people and couples aged 55 and over, for those with continuing health care needs, or residents who need some additional support. They also have three extra care schemes designed to meet residents' changing care support needs.
  • Caring for someone with dementiaNovember 20 2019Caring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
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