DementiaRoadmap Wales

Promoting living well with dementia across Wales

At home

Continuing to remain independent is important to most people.

Support can be provided to enable people to live at home, this may include domiciliary support, support with personal care, adaptions adjustments and equipment.

Advice on these can be obtained from the local authority, a Dementia Advisor or Age UK.

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Resources

  • Active Minds – dementia activity resourcesFebruary 12 2016Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
  • The Daily SparkleFebruary 5 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Dementia and homecare: driving quality and innovationFebruary 22 2016This report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment.
  • Making your home dementia friendlyOctober 20 2015This booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
  • Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • Independent Living Equipment in GwentNovember 1 2019Cefndy-Medequip work with local authorities and the NHS to provide the community equipment service in Gwent. They specialise in aids and equipment for the home, mobility, bathrooms, bedrooms, kitchen and dining, living room and outdoors. Their catalogue has a section called "Dementia Friendly Collection".
  • Support, Stay, Save: care and support of people with dementia in their own homesApril 4 2011This report provides evidence from over 2,000 carers, people with dementia and home care workers on the aspirations, experiences and outcomes of providing dementia care in the community in England, Wales and Northern Ireland.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • AT DementiaMarch 13 2014AT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.
  • Assistive technology – devices to help with everyday livingAugust 12 2013This factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.
  • New models of care for dementiaApril 9 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
  • Find me good careOctober 23 2012This website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.
  • The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Telehealth and Telecare AwareJuly 11 2014This online information portal provides a news and information service for people interested in telecare and telehealth.
  • Dementia: Finding housing solutionsMay 7 2013This report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
  • Supporting people with dementia at homeJanuary 14 2013This training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
  • Dementia-friendly technology charterJune 23 2014The Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.
  • State of Care 2013/14October 16 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
  • Service specification for dementia: better care at home, and in care homesJuly 28 2011This specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.
  • The Royal British Legion – Admiral Nurse ServiceApril 24 2019The Royal British Legion Admiral Nurses offers specialist support, information and advice to the carers of people with dementia. It is available to anyone who has served in the British Armed Forces their family and carers.
  • Making your home a better place to live with dementiaJune 9 2014This briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.
  • Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
  • Journey of Caring: An analysis of long-term care for dementiaSeptember 19 2013This report published by Alzheimer’s Disease International highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.
  • Case for change – Communities for people living with dementiaNovember 28 2011This document explains the evidence that has been used in designing the service to support people with dementia, whether living at home or in care homes, as well as dementia-specific elements of other Communities.
  • Understanding out of hospital dementia careMay 10 2011This report, published by Healthcare at Home, explores home-based models of care that will keep people with dementia out of hospital.
  • Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementiaNovember 28 2011This guide to personalisation and dementia has been written for, and with input from, people living with dementia, their families and friends, and the practitioners who support them.
  • NHS Continuing Healthcare and NHS-funded Nursing CareMarch 28 2019NHS Continuing Healthcare  If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
  • Commissioning domiciliary care for people with dementia and their carersNovember 28 2009The purpose of this paper is to assist commissioners in ensuring that homecare for people with dementia is appropriate to their needs and/or the needs of their carers.
  • Priority Services RegisterOctober 11 2019Did you know that every gas, water and electricity supplier – the companies you pay your bills to, and your electricity distribution network, has what’s called a Priority Services Register (PSR)? The Priority Services Register (PSR) is a free service offered throughout the energy industry available to domestic customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs.
  • The Herbert Protocol for Missing People with DementiaJanuary 22 2020The Herbert Protocol asks carers, family members and friends of people with Dementia, to complete a form, recording all vital details about their loved one. This information can then be shared quickly with the relevant agencies should their loved one be reported missing.
  • Social Services Support for DementiaMarch 28 2019Even if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
  • Eye Tests at HomeApril 4 2019Eye care is important for people with dementia and may be provided at home or in a care home. Eye examinations are free for over 60's and for some younger people with dementia, as are home visits if it is difficult to get to a practice. Benefits may be available to help towards the cost of glasses. 
  • Home Safety House Check by South Wales Fire and Rescue ServiceApril 18 2019South Wales Fire and Rescue offer you the opportunity to have a FREE Safe and Well visit in your home. This will be carried out by firefighters from your local Fire Station and their Home Safety Team. The visit takes about 30 minutes and they will provide and install free smoke alarms, heat detectors and carbon monoxide alarms where risk is identified. Alarms for people who are Deaf or hard of hearing are also available.
  • Useful Apps for Dementia Patients & CarersApril 25 2019There are many apps available that can be downloaded to a smartphone or tablet  that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
  • Dementia Friendly Housing CharterMarch 23 2017This toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
  • ENABLE – Support for Independent LivingNovember 1 2019ENABLE provides support for independent living through adaptations, so people can access all the key facilities in their homes. Whether you own or rent your home, the basic arrangements are the same.
  • Preparing for a Social Services Care Needs AssessmentMarch 28 2019Tips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below.  http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment  
  • Advance Care PlanningIf you were to lose the capacity to make decisions about your life today, what are the important things you would like those caring for you to know about you and what you would want to happen? One way of making people aware of your wishes is by a process that is called advance care planning.
  • Independent Living by MelinNovember 1 2019Melin's Independent Living team manages over 850 properties across Blaenau Gwent, Torfaen, Newport, South Powys and Monmouthshire. These are designed for single people and couples aged 55 and over, for those with continuing health care needs, or residents who need some additional support. They also have three extra care schemes designed to meet residents' changing care support needs.
  • A Pocket Guide to Being Dementia SupportiveDecember 10 2019A Pocket Guide to Being Dementia Supportive provides a few useful tips from Ageing Well in Wales partners about how you can be more supportive to people living with dementia. Even the smallest action can make a big difference.
  • Mouth care for people living with dementiaNovember 20 2019Mouth care for people living with dementia is a leaflet published by Aneurin Bevan Community Dental Service to provide information for carers. Information includes: mouth care, diet, brushing teeth and gums, denture care, and visiting the dentist.
  • Care & Repair – help to repair, adapt and maintain your homeOctober 23 2019Care & Repair can provide help to repair, adapt and maintain your home. For older home owners and private tenants.
  • Accredited Reminiscence Training – Remember MeSeptember 25 2019Remember Me is a Health and Social Care Level 3 course accredited through Agored Cymru. The course enables learners to plan and deliver safe reminiscence sessions using multi-sensory resources and is ideal for those working in care settings and Day Centres. Participants receive a training ...
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