DementiaRoadmap Wales

Promoting living well with dementia across Wales

Living well with dementia

Many people are happier if they can remain independent and in their own homes as long as possible. It is important for clinicians to encourage the person with dementia to be as  independent as possible  and to continue to do the things that they enjoy.

There are some practical things that people can do to help them to live as well as possible; focusing on the things they can and want to do and trying not to become isolated, keeping busy with activities they enjoy may help them to feel more confident.

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  • Dementia: Reduce your risk in 6 stepsApril 23 2018This document outlines 6 steps that people can take to improve both physical and mental health and significantly reduce the risk of developing dementia.
  • National Dementia Vision for WalesSeptember 25 2011The National Dementia Vision for Wales sets the Welsh governmnet's vision to strengthen communities, creating a key resource for people affected by dementia at local and national level. The objective being that over time, building on local improvements from the grass roots up, a network of local dementia supportive communities will create a national dementia supportive community.
  • Active Minds – dementia activity resourcesFebruary 12 2016Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
  • The Daily SparkleFebruary 5 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Fulfilled Lives, Supportive Communities: A Strategy for Social Services in Wales over the next decadeFebruary 21 2007This strategy describes how modern accessible and responsive social services, delivered flexibly, consistently and sustainably across organisational boundaries will contribute to a better Wales and to improving the lives of its citizens.
  • Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Fix dementia care – NHS and care homesApril 29 2016This report published by the Alzheimer's Society marks the second phase of a campaign looking at the experiences of people with dementia in a range of health and care settings. It contains the results of a survey of care home managers and the voices of people with dementia, their families and carers.
  • Accessible Information StandardJuly 28 2015The Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
  • Helping your loved one with dementia eat wellJune 2 2016This infographic published by Bupa UK offers some pointers for carers and relatives on how to help people with dementia to eat well so that they remain healthy and can continue to remain independent in their own home.
  • Dementia rarely travels alone: living with dementia and other conditionsApril 20 2016This report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.
  • Prevalence of dementia in population groups by protected characteristics: a systematic review of the literatureOctober 2 2015This literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion.
  • On the journey to becoming a dementia friendly organisationSeptember 3 2015This paper shares the lessons that have been learned through the Joseph Rowntree Foundation’s Dementia without Walls programme which started in June 2012 with a vision of making the UK a better place for people with dementia.
  • World Alzheimer Report 2015: The Global Impact of DementiaAugust 25 2015The World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.
  • Grief, loss and bereavementMarch 1 2016This factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.
  • Better planning for car ownership and well-being in old ageMay 31 2016This briefing paper published by the Housing Learning and Improvement Network seeks to connect the body of knowledge around the significance of car ownership in achieving well-being for older people to those making decisions that may impact on car ownership among older people.
  • Cataracts and dementia factsheetJune 25 2013The information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.
  • Wearing glasses with dementia factsheetNovember 10 2014This factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
  • Eye examinations for people with dementia factsheetThis factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.
  • Moving into a care home: advice for lesbian, gay and bisexual peopleFebruary 22 2012This factsheet published by the Alzheimers Society provides some advice for lesbian, gay and bisexual people on choosing a suitable care home and suggests things to think about when the person moves in.
  • Support and care for people living with dementia from minority communitiesFebruary 24 2013This report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
  • Dementia and homecare: driving quality and innovationFebruary 22 2016This report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment.
  • Making your home dementia friendlyOctober 20 2015This booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
  • Creating a dementia friendly workplace: A practical guide for employersApril 22 2015This guide published by the Alzheimer's Society is designed to help employers provide support for staff members with dementia. It may also be a useful resource for people living with, or affested by, dementia in the workplace.
  • Spirituality and ageing: implications for the care and support of older peopleJanuary 22 2013This briefing paper published the Institute for Research and Innovation in Social Services explores why our ageing population requires person-centred care and developmental support in order to maximise its chances of ageing well.
  • Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
  • Duty of Candour: Information for all providersMarch 15 2015This document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
  • Peer Support for People with Dementia: A social return on investment studySeptember 16 2015This report published by the Health Innovation Network South London, the Academic Health Science Network for South London, outlines the findings of a study which demonstrated that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment.
  • Developing a national user movement of people with dementiaSeptember 3 2015This report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them.
  • Mental Health Act 1983: Code of PracticeJanuary 16 2015The revised code of practice shows professionals how to carry out their roles and responsibilities under the Mental Health Act 1983, to ensure that all patients receive high quality and safe care.
  • How can we make our cities dementia friendly?September 3 2015This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York.
  • Evaluation of the Bradford Dementia Friendly Communities ProgrammeSeptember 16 2015This report published by the Joseph Rowntree Foundation identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like.
  • John’s CampaignJanuary 15 2018John’s Campaign is about making carers of people with dementia welcome on hospital wards and reflects a positive attitude towards the importance of carers and sensitivity to their needs.
  • Evaluation of the York Dementia Friendly Communities ProgrammeSeptember 3 2015This report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.
  • Reading well books on prescription for dementiaFebruary 4 2015The Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
  • Building on the National Dementia Strategy: Change, progress and prioritiesJuly 27 2014This report published by the All Party Parliamentary Party Group on Dementia (APPG) calls for a new long term strategy for dementia to be a worthy successor to the National Dementia Strategy for Dementia in England and the Prime Minister's challenge on dementia.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • Dementia Action Plan for Wales 2018 – 2022November 20 2019The Welsh government have adopted the Dementia Action Plan for Wales 2018 - 2022, with Vaughan Gething, Cabinet Secretary for Health and Social Services, stating that,  "Our vision is for Wales to be a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities."
  • Always a last resort: Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homesApril 4 2008This report published by the All-Party Parliamentary Group on Dementia (APPG) examines the problem of the over prescription of antipsychotic drugs to people with dementia living in care homes and proposes workables solutions.
  • Women and Dementia: A global research overviewJune 5 2015This report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective.
  • Prepared to care – Challenging the dementia skills gapJune 4 2009This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
  • Independent Living Equipment in GwentNovember 1 2019Cefndy-Medequip work with local authorities and the NHS to provide the community equipment service in Gwent. They specialise in aids and equipment for the home, mobility, bathrooms, bedrooms, kitchen and dining, living room and outdoors. Their catalogue has a section called "Dementia Friendly Collection".
  • Dewis CymruApril 27 2018Dewis Cymru is a website that provides information and advice about well-being. In addition to health information, Dewis Cymru provides information about people and services in your area that can help you with the things that matter to you.
  • Support, Stay, Save: care and support of people with dementia in their own homesApril 4 2011This report provides evidence from over 2,000 carers, people with dementia and home care workers on the aspirations, experiences and outcomes of providing dementia care in the community in England, Wales and Northern Ireland.
  • Join Dementia ResearchFebruary 27 2015Join Dementia Research aims to accelerate the pace of dementia research by allowing people with and without dementia to register their interest in studies, helping researchers find the right participants at the right time.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • Dementia awareness resource packApril 10 2011This pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
  • Cracks in the pathwayOctober 30 2014This report presents the findings of a Care Quality Commission review of the care people living with dementia receive as they moved between care homes and acute hospitals.
  • The dementia guideFebruary 22 2014This guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
  • Five Year Forward ViewOctober 23 2014The Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.
  • Pain in People with Dementia: A Silent TragedyJanuary 7 2015This report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.
  • No Secrets: guidance on protecting vulnerable adults in careJanuary 22 2015This guidance document published by the Department of Health sets out a code of practice for the protection of vulnerable adults in care.
  • Optimising treatment and care for behavioural and psychological symptoms of dementiaJuly 28 2011This best practice guide has been developed in consultation with an advisory group of leading clinicians specialising in dementia.
  • Driving and dementiaMay 21 2014This Alzheimer's Society factsheet explains the legal situation around driving and dementia, and gives some tips on stopping driving.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • AT DementiaMarch 13 2014AT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.
  • Better care for older peopleJuly 11 2014This online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
  • Virtual Hospital modelling toolNovember 5 2013The Virtual Hospital modelling tool, developed by the Dementia Services Development Centre, aims to show good design can help to make an acute hospital setting dementia-friendly.
  • Assistive technology – devices to help with everyday livingAugust 12 2013This factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.
  • New models of care for dementiaApril 9 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
  • Dementia ConnectApril 26 2018Dementia Connect is Alzheimer's Society's comprehensive services directory for people affected by dementia in England, Wales and Northern Ireland.
  • Find me good careOctober 23 2012This website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.
  • This is meFebruary 23 2010'This is me' is a leaflet produced by the Alzheimer's Society to help hospital staff better understand the needs of people with dementia.
  • The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
  • Low expectations: attitudes on choice, care and community for people with dementia in care homesFebruary 26 2013This report published by the Alzheimer’s Society stresses the need to lift expectations and to strengthen existing minimum standards to boost quality of life for people with dementia in care homes.
  • Dementia Peer Support Resource PackApril 24 2015This resource pack, published by the Health Innovation Network, the Academic Health Science Network for South London, aims to promote and encourage more peer support opportunities for people with dementia.
  • Dementia: A state of the nation report on dementia care and support in EnglandNovember 29 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
  • Dementia FriendsFebruary 21 2013Dementia Friends is an Alzheimer’s Society initiative that aims to give a million people a better understanding of dementia by 2015.
  • Putting dementia on the mapNovember 29 2013Putting dementia on the map published by the Department of Health draws on data and information about dementia health and care, dementia friendly communities and research.
  • Care of people with dementia in primary careMarch 10 2012This factsheet published by the Royal College of General Practitioners provides GPs with guidance on the care of people with dementia in primary care.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Making a Difference in Dementia: Nursing StrategyMarch 15 2013This nursing vision and strategy for dementia care, published by the Department of Health, makes clear that every nurse can make a difference to the care of people with dementia.
  • Award in Understanding DementiaMarch 18 2015The Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
  • Participation in dementia researchMay 19 2013This short film aims to encourage more patients and carers to take part in ground-breaking research into dementia and other neurodegenerative diseases.
  • Blackfriars Consensus on promoting brain healthMay 3 2014The Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
  • Telehealth and Telecare AwareJuly 11 2014This online information portal provides a news and information service for people interested in telecare and telehealth.
  • Dementia: Finding housing solutionsMay 7 2013This report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
  • Dementia commissioning for quality and innovationMarch 10 2012Dementia commissioning for quality and innovation (CQUIN) aims to help identify patients with dementia and other causes of cognitive impairment, alongside their other medical conditions and to prompt appropriate referral and follow up after they leave hospital.
  • Service specification for dementia: mental health liaison service for general and community hospitalsJuly 28 2011This specification has been designed to assist commissioners in the delivery of a service to support general and community hospitals to deliver better care to people with dementia.
  • Women’s experiences of dementiaJune 1 2015The 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.
  • Supporting people with dementia at homeJanuary 14 2013This training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
  • CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
  • Choosing your hospitalMarch 12 2014Most patients can choose which hospital they are seen in according to what matters most to them, whether it's location, waiting times, reputation, clinical performance, visiting policies, parking facilities or other patients' comments.
  • Improving the care of people with dementia in general hospitalsSeptember 21 2011Dignity in dementia; improving care in general hospital settings, a Royal College of Nursing led project, has launched tools to improve the care of people with dementia in general hospitals.
  • Handy guide to selecting a care homeJanuary 28 2013This guide published by the Alzheimer’s Society is designed to be taken into care homes by people with dementia and their families and provides an independent and objective guide to what makes good quality care.
  • Supporting a person with dementiaOctober 16 2014This Easy Read factsheet published by the the Alzheimer's Society provides advice for someone with learning disabilities who may have a friend or relative with dementia.
  • Hospital 2 Home resource packOctober 26 2012This resource is designed to make it easier for health and social care professionals involved in hospital discharge to support older patients in returning home safely after a hospital stay and reduce the risk of readmission to hospital.
  • A vision of care fit for the twenty-first centurySeptember 3 2014This report published by the Commission on Residential Care offers a vision of housing with care fit for the twenty-first century, not bound by existing definitions but based on the outcomes that people want and value.
  • Dementia-friendly technology charterJune 23 2014The Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.
  • State of Care 2013/14October 16 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
  • Focus on dementia researchMay 10 2014The National Institute for Health Research (NIHR) website Focus on Dementia showcases some of the cutting-edge clinical research that could bring new hope to dementia patients and their families.
  • Dementia and comorbidities: Ensuring parity of careApril 14 2016This report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.
  • The Right Care: creating dementia friendly hospitalsOctober 15 2012The Right Care is a call to action to transform the acute hospital experience for people with dementia and their carers.
  • Dementia Revealed: What primary care needs to knowOctober 30 2014This toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.
  • Service specification for dementia: better care at home, and in care homesJuly 28 2011This specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.
  • The Royal British Legion – Admiral Nurse ServiceApril 24 2019The Royal British Legion Admiral Nurses offers specialist support, information and advice to the carers of people with dementia. It is available to anyone who has served in the British Armed Forces their family and carers.
  • The Triangle of Care – carers included: A guide to best practice for dementia careSeptember 4 2013The Triangle of Care is a model for dementia care that supports a partnership approach between the person with dementia, the staff member and carer. It is designed to ensure that carers are appropriately included and involved in the care of people with dementia, particularly in hospital settings.
  • Collaborative Care and Support Planning: an introductionJanuary 19 2015This animation, commissioned by the Royal College of General Practitioners, sets out the collaborative care and support planning process in a short, easy to understand way.
  • Dementia 2013: The hidden voice of lonelinessApril 9 2013This report, published Alzheimer’s Society, reveals that nearly two thirds (62%) of more than 250,000 people with dementia who live on their own are lonely. This compares to just 24 per cent of over 55 year olds.
  • Good to go: A guide to dementia-friendly days outApril 28 2015This handbook published by Care UK aims to support carers relatives and friends who want to enjoy a variety of outings and trips with someone living with dementia.
  • Request for proposal: action plan to improve care for people with dementia in hospitalJuly 28 2011This is a request for a proposal to improve care for people with dementia in hospital.
  • Improving services and support for people with dementiaJuly 3 2007This report published by the National Audit Office presents findings from a study into the health and social care services available for people with dementia and their unpaid carers in England and whether they are providing effective and good quality support; and the scope for better use of resources against a background of rising demand.
  • Making your home a better place to live with dementiaJune 9 2014This briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.
  • Counting the cost: caring for people with dementia on hospital wardsNovember 28 2009This report published by the Alzheimer's Society reveals unacceptable variations in the quality of care for people with dementia in hospital and puts forward recommendations to improve dementia care, shorten the length of stay and reduce costs.
  • Dementia UKFebruary 3 2007This report into the prevalence and cost of dementia shows that as the UK's population ages the number of people with dementia will grow substantially. It also shows that dementia costs the UK £17 billion a year.
  • Care and Support Jargon BusterMay 14 2014The Care and Support Jargon Buster published by Think Local Act Personal is a plain English guide to the most commonly used social care words and phrases and what they mean.
  • Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
  • National Audit of Dementia in General HospitalsJuly 12 2013The second report of the National Audit of Dementia in General Hospitals identifies continuing problems in the quality of care received by people with dementia in hospitals in England and Wales.
  • Journey of Caring: An analysis of long-term care for dementiaSeptember 19 2013This report published by Alzheimer’s Disease International highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.
  • Making involvement countOctober 7 2011The Making involvement count resource pack is made up 18 cards each aimed at giving specific information, advice and top tips to support people with dementia to get involved in activities whilst recognising their current abilities.
  • How would I know? What can I do?December 6 2012This guide, developed by the National Council for Palliative Care (NCPC), provides advice for carers and those who work with people with dementia on how to help with pain and distress in people with the condition.
  • Case for change – mental health liaison service for dementia care in hospitalsJuly 28 2011This document explains the evidence that has been used to identify eligible patients and for the design of mental health liaison services in general and community hospitals and its core components.
  • Case for change – Communities for people living with dementiaNovember 28 2011This document explains the evidence that has been used in designing the service to support people with dementia, whether living at home or in care homes, as well as dementia-specific elements of other Communities.
  • The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015The Sound Doctor is a website full of films developed to help individuals, their relatives and carers to better understand the condition so that they can all take control and get the most out of life.
  • Understanding out of hospital dementia careMay 10 2011This report, published by Healthcare at Home, explores home-based models of care that will keep people with dementia out of hospital.
  • Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementiaNovember 28 2011This guide to personalisation and dementia has been written for, and with input from, people living with dementia, their families and friends, and the practitioners who support them.
  • Women and dementia: A marginalised majorityMarch 8 2015This report published by Alzheimer's Research UK reveals that dementia has become the leading cause of death among British women and that women are far more likely to end up as carers of those with dementia than men, suffering physical and emotional stress and job losses in the process.
  • A practical guide to healthy ageingOctober 1 2015This guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
  • Dementia assessment and referral 2014-15October 28 2014This data collection reports on the number and proportion of patients aged 75 and over admitted as an emergency for more than 72 hours who have been identified as potentially having dementia, who are appropriately assessed and, where appropriate, referred on to specialist services in England.
  • NHS Continuing Healthcare and NHS-funded Nursing CareMarch 28 2019NHS Continuing Healthcare  If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
  • Commissioning domiciliary care for people with dementia and their carersNovember 28 2009The purpose of this paper is to assist commissioners in ensuring that homecare for people with dementia is appropriate to their needs and/or the needs of their carers.
  • See me, not just the dementiaJune 22 2008This report looks at the experiences of people with dementia living in care homes in England, with a particular focus on whether their care offers dignity and respect.
  • Delivering major improvements in dementia care and research by 2015: A report of progressNovember 8 2012This report by the three Champion Groups leading the Prime Minister's challenge on dementia provides an update on progress since the launch of the Challenge in March 2012.
  • Priority Services RegisterOctober 11 2019Did you know that every gas, water and electricity supplier – the companies you pay your bills to, and your electricity distribution network, has what’s called a Priority Services Register (PSR)? The Priority Services Register (PSR) is a free service offered throughout the energy industry available to domestic customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs.
  • National Audit of Dementia – third reportJuly 13 2017The National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016.
  • The Herbert Protocol for Missing People with DementiaJanuary 22 2020The Herbert Protocol asks carers, family members and friends of people with Dementia, to complete a form, recording all vital details about their loved one. This information can then be shared quickly with the relevant agencies should their loved one be reported missing.
  • Social Services Support for DementiaMarch 28 2019Even if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
  • Eye Tests at HomeApril 4 2019Eye care is important for people with dementia and may be provided at home or in a care home. Eye examinations are free for over 60's and for some younger people with dementia, as are home visits if it is difficult to get to a practice. Benefits may be available to help towards the cost of glasses. 
  • UnforgettableUnforgettable.org is a website offering advice and community as well as products to help improve the lives of people with dementia. It provides some interesting blogs of people's experiences with dementia including real stories and diaries.
  • Home Safety House Check by South Wales Fire and Rescue ServiceApril 18 2019South Wales Fire and Rescue offer you the opportunity to have a FREE Safe and Well visit in your home. This will be carried out by firefighters from your local Fire Station and their Home Safety Team. The visit takes about 30 minutes and they will provide and install free smoke alarms, heat detectors and carbon monoxide alarms where risk is identified. Alarms for people who are Deaf or hard of hearing are also available.
  • Useful Apps for Dementia Patients & CarersApril 25 2019There are many apps available that can be downloaded to a smartphone or tablet  that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
  • Dementia Friendly Housing CharterMarch 23 2017This toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
  • CEA Cinema CardMarch 7 2019The CEA Card is a national card scheme developed for UK cinemas by the UK Cinema Association (UKCA). The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.  
  • ENABLE – Support for Independent LivingNovember 1 2019ENABLE provides support for independent living through adaptations, so people can access all the key facilities in their homes. Whether you own or rent your home, the basic arrangements are the same.
  • NHS Health Check commissioning: Commissioner’s current and potential use of weighted financial remunerationFebruary 23 2018This report includes details of a literature review of commissioner’s current and potential use of weighted financial remuneration and provides recommendations for commissioners.
  • Lasting Power of AttorneyMarch 28 2019After a diagnosis of Dementia, it is worth forward planning including setting up Lasting Power of Attorney for both health and financial affairs. 
  • Preparing for a Social Services Care Needs AssessmentTips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below.  http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment  
  • Turning up the volume: unheard voices of people with dementiaJanuary 23 2018This report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia. It provides an insight into the gap between the things that people living with dementia need to live well and their day-to-day reality.
  • Benefits for people affected by dementiaApril 11 2019The Alzheimer's Society website provides information about a number of benefits that may be available to you. This includes details on what and how you can claim.
  • Disabled Person’s RailcardMarch 28 2019The Disabled Persons Railcard is for people with a disability that makes travelling by train difficult. It entitles you to qualify for 1/3 off rail fares for you and a companion travelling with you.
  • Advance Care PlanningIf you were to lose the capacity to make decisions about your life today, what are the important things you would like those caring for you to know about you and what you would want to happen? One way of making people aware of your wishes is by a process that is called advance care planning.
  • Living with Dementia – 51 Tips to Help You With Daily LivingJune 26 2019In this in-depth infographic and article UK Care Guide offers a range of tips of advice to help people to live well with dementia.
  • A Guide to Respite for People Affected by DementiaNovember 26 2018This guide gives carers and people living with dementia the information they need when considering respite, to help them to explore respite alternatives, and sets out their rights.
  • Living with early-stage dementiaNovember 20 2019Living with early-stage dementia is a comprehensive guide published by Age UK, also known as Age Cymru in Wales.
  • Gwent Access to AdvocacyAugust 30 2019Gwent Access to Advocacy GATA provides a single point of access for advocacy services in Gwent covering Blaenau Gwent, Caerphilly, Monmouthshire and Torfaen. (For Newport contact Dewis Centre for Independent Living (CIL))
  • Caring for someone with dementiaNovember 20 2019Caring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
  • Projections of Older People Living with Dementia and Costs of Dementia Care in the United Kingdom, 2019–2040November 25 2019This report published by the Care Policy and Evaluation Centre at the London School of Economics and Political Science provides projections of the number of older people (aged 65 and over) living with dementia in the UK and the costs of healthcare, social care and unpaid care from 2019 to 2040.
  • Independent Living by MelinNovember 1 2019Melin's Independent Living team manages over 850 properties across Blaenau Gwent, Torfaen, Newport, South Powys and Monmouthshire. These are designed for single people and couples aged 55 and over, for those with continuing health care needs, or residents who need some additional support. They also have three extra care schemes designed to meet residents' changing care support needs.
  • A Pocket Guide to Being Dementia SupportiveDecember 10 2019A Pocket Guide to Being Dementia Supportive provides a few useful tips from Ageing Well in Wales partners about how you can be more supportive to people living with dementia. Even the smallest action can make a big difference.
  • The Many Faces of DementiaSeptember 9 2019This online course enables you to gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses of dementia, the people involved and the implications of these for our wider understanding.
  • Risk reduction of cognitive decline and dementiaMay 14 2019The World Health Organization (WHO) guidelines on risk reduction of cognitive decline and dementia provide evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.
  • Care & Repair – help to repair, adapt and maintain your homeOctober 23 2019Care & Repair can provide help to repair, adapt and maintain your home. For older home owners and private tenants.
  • Mouth care for people living with dementiaNovember 20 2019Mouth care for people living with dementia is a leaflet published by Aneurin Bevan Community Dental Service to provide information for carers. Information includes: mouth care, diet, brushing teeth and gums, denture care, and visiting the dentist.
  • Accredited Reminiscence Training – Remember MeSeptember 25 2019Remember Me is a Health and Social Care Level 3 course accredited through Agored Cymru. The course enables learners to plan and deliver safe reminiscence sessions using multi-sensory resources and is ideal for those working in care settings and Day Centres. Participants receive a training ...
  • Dementia wellbeing in the COVID-19 pandemicSeptember 28 2020This resource is primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia. This document takes the Dementia Well Pathway and sets out the adjustments and amendments needed to respond to the COVID-19 pandemic. It highlights key priorities and actions for each step in the pathway.
  • Useful tips on the COVID-19 vaccine for people with dementiaJanuary 25 2021This briefing developed by the Royal College of Psychiatrists, working with Dementia UK, includes useful tips for giving the COVID-19 vaccine without causing distress and how to explain the vaccination to someone who is living with dementia.
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