Carer support groups offer support and information for people looking after someone with dementia. At some support groups an on-site service with activities is provided for people with dementia to enable the carer to attend.
- Fulfilled Lives, Supportive Communities: A Strategy for Social Services in Wales over the next decadeFebruary 21 2007This strategy describes how modern accessible and responsive social services, delivered flexibly, consistently and sustainably across organisational boundaries will contribute to a better Wales and to improving the lives of its citizens.
- Accessible Information StandardJuly 28 2015The Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
- Loss and bereavement in people with dementiaFebruary 26 2016This leaflet published by Alzheimer Scotland addresses the lack of help and information available for formal and informal carers of people with dementia who are bereaved.
- Grief, loss and bereavementMarch 1 2016This factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.
- Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
- John’s CampaignJanuary 15 2018John’s Campaign is about making carers of people with dementia welcome on hospital wards and reflects a positive attitude towards the importance of carers and sensitivity to their needs.
- Reading well books on prescription for dementiaFebruary 4 2015The Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
- Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
- NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
- What about me? Remembering the needs of carersJuly 29 2010This short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.
- The dementia guideFebruary 22 2014This guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
- Dementia CarerJune 9 2014Dementia Carer is a website that provides access to a wide range of video clips featuring carers discussing what helps them cope with issues they encounter in caring for someone with dementia.
- QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
- Dementia: A state of the nation report on dementia care and support in EnglandNovember 29 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
- A road less rocky – supporting people with dementiaSeptember 4 2013This report published by the Carers Trust highlights that carers of people with dementia are not getting the support and advice they often desperately need.
- Information about Lewy Body DementiaApril 27 2015This handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
- Caregiver Strain IndexJuly 3 1983The Caregiver Strain Index (CSI) is a tool that can be used to quickly identify families with potential caregiving concerns.
- Caring for CarersMarch 3 2015The Caring for Carers Hub developed by the Royal College of General Practitioners is a web based tool that can help primary care staff to more effectively support carers and the people they care for.
- CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
- The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
- Carers AssessmentJanuary 13 2015This factsheet published by Carers UK outlines the Carers Assessment, a legal entitlement which explores how being a carer affects someone, how much caring they can realistically do, and any help they may need.
- Commissioning for Carers PrinciplesDecember 5 2014This practical tool is part of a suite of products that will help commissioners to deliver what carers say is important to them in ways that have been shown to work effectively and efficiently in practice.
- The Triangle of Care – carers included: A guide to best practice for dementia careSeptember 4 2013The Triangle of Care is a model for dementia care that supports a partnership approach between the person with dementia, the staff member and carer. It is designed to ensure that carers are appropriately included and involved in the care of people with dementia, particularly in hospital settings.
- Listen, talk, connect: Communicating with people living with dementiaSeptember 5 2014This handbook published by Care UK is a guide to support carers relatives and friends who want to communicate effectively with someone living with dementia.
- Good to go: A guide to dementia-friendly days outApril 28 2015This handbook published by Care UK aims to support carers relatives and friends who want to enjoy a variety of outings and trips with someone living with dementia.
- How would I know? What can I do?December 6 2012This guide, developed by the National Council for Palliative Care (NCPC), provides advice for carers and those who work with people with dementia on how to help with pain and distress in people with the condition.
- Carers Evidence Summits ebookDecember 5 2014NHS Improving Quality has produced an ebook to share the Commitment to Carers achievements over the last year. It includes the findings from the regional Carers Evidence Summits and links to over 50 case studies.
- Recognised, valued and supported: Next steps for the Carers StrategyDecember 3 2010This strategy identifies the actions that the Government will take between 2011-15 to support its priorities to ensure the best possible outcomes for carers and those they support.
- Dewis CymruApril 27 2018Dewis Cymru is a website that provides information and advice about well-being. In addition to health information, Dewis Cymru provides information about people and services in your area that can help you with the things that matter to you.
- Dementia ConnectApril 26 2018Dementia Connect is Alzheimer's Society's comprehensive services directory for people affected by dementia in England, Wales and Northern Ireland.
- National Audit of Dementia – third reportJuly 13 2017The National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016.
- State of Caring 2017August 25 2017This survey undertaken by Carers UK paints a comprehensive picture of caring in 2017 and more than 7,000 people responded, making it the largest State of Caring Survey to date.
- Dementia Action Plan for Wales 2018 – 2022November 20 2019The Welsh government have adopted the Dementia Action Plan for Wales 2018 - 2022, with Vaughan Gething, Cabinet Secretary for Health and Social Services, stating that, "Our vision is for Wales to be a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities."
- Turning up the volume: unheard voices of people with dementiaJanuary 23 2018This report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia. It provides an insight into the gap between the things that people living with dementia need to live well and their day-to-day reality.
- Guidelines for Helping the Confused Older PersonMay 16 2019These guidelines are designed to help someone be able to provide assistance to an older person experiencing confusion or the cognitive changes associated with dementia although may prove useful for any age group with dementia.
- Preparing for a Social Services Care Needs AssessmentMarch 28 2019Tips for people with Dementia on preparing for a social services care needs assessment can be found on the Alzheimers UK website, link below. http://www.alzheimers.org.uk/get-support/legal-financial/dementia-care-needs-assessment
- CEA Cinema CardMarch 7 2019The CEA Card is a national card scheme developed for UK cinemas by the UK Cinema Association (UKCA). The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema.
- The Royal British Legion – Admiral Nurse ServiceApril 24 2019The Royal British Legion Admiral Nurses offers specialist support, information and advice to the carers of people with dementia. It is available to anyone who has served in the British Armed Forces their family and carers.
- Advance Care PlanningMarch 28 2019If you were to lose the capacity to make decisions about your life today, what are the important things you would like those caring for you to know about you and what you would want to happen? One way of making people aware of your wishes is by a process that is called advance care planning.
- Social Services Support for DementiaEven if you feel you don't need support now, it's a good idea to know what's available and plan ahead. The adult social services department of your local council can help with your personal care and day-to-day activities. The first step is to arrange a needs assessment.
- Useful Apps for Dementia Patients & CarersApril 25 2019There are many apps available that can be downloaded to a smartphone or tablet that could be beneficial to people with dementia. Apps are available for daily aid, memory training, relaxation, care giver information and games.
- Disabled Person’s RailcardMarch 28 2019The Disabled Persons Railcard is for people with a disability that makes travelling by train difficult. It entitles you to qualify for 1/3 off rail fares for you and a companion travelling with you.
- Priority Services RegisterOctober 11 2019Did you know that every gas, water and electricity supplier – the companies you pay your bills to, and your electricity distribution network, has what’s called a Priority Services Register (PSR)? The Priority Services Register (PSR) is a free service offered throughout the energy industry available to domestic customers across England, Wales and Scotland. Through the PSR, eligible customers can receive additional services in relation to their communication, access and safety needs.
- NHS Continuing Healthcare and NHS-funded Nursing CareMarch 28 2019NHS Continuing Healthcare If you have complex health and care needs, the NHS may cover the cost of all your care at home or in a care home, including the services you receive from the local council. This is called continuing healthcare and is funded ...
- Benefits for people affected by dementiaApril 11 2019The Alzheimer's Society website provides information about a number of benefits that may be available to you. This includes details on what and how you can claim.
- Caring for someone with dementiaNovember 20 2019Caring for someone with dementia is a comprehensive booklet published by Age UK, whose network includes Age Cymru in Wales.
- Carers WalesNovember 1 2019Carers Wales wants a society that respects, values and supports carers. To do this they: give expert advice, information and support. connect carers so no-one has to care alone. campaign together for lasting change. innovate to find new ways to reach and support carers. Check ...
- The Herbert Protocol for Missing People with DementiaJanuary 22 2020The Herbert Protocol asks carers, family members and friends of people with Dementia, to complete a form, recording all vital details about their loved one. This information can then be shared quickly with the relevant agencies should their loved one be reported missing.
- Dementia Superheroes – Helping to make Dementia a little less scary for kidsAugust 7 2019It can be hard for a child to see someone they love with dementia. The Dementia Superheroes are cartoons designed by the Alzheimers Society, to help make dementia a little less scary for your child.
- Mouth care for people living with dementiaNovember 20 2019Mouth care for people living with dementia is a leaflet published by Aneurin Bevan Community Dental Service to provide information for carers.
Information includes: mouth care, diet, brushing teeth and gums, denture care, and visiting the dentist.
- Dementia wellbeing in the COVID-19 pandemicSeptember 28 2020This resource is primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia. This document takes the Dementia Well Pathway and sets out the adjustments and amendments needed to respond to the COVID-19 pandemic. It highlights key priorities and actions for each step in the pathway.
- Alzheimer’s Society WalesAlzheimer’s Society is the leading care and research charity for people with dementia their families
and carers. The Alzheimer's Society Wales provides a wide range of services to support people living with dementia and their carers.16 Columbus Walk, Atlantic Wharf, Cardiff, CF10 4BY02920 firstname.lastname@example.org://www.alzheimers.org.uk/site/scripts/documents.php?categoryID=200139
- Cwm Taf University Health BoardCwm Taf University Health Board is responsible for providing healthcare services to the population of Merthyr Tydfil and Rhondda Cynon Taf, estimated to be around 289,400 people.Ynysmeurig House, Navigation Park, Abercynon, Rhondda Cynon Taff, CF45 4SN01443 744800https://www.cwmtafuhb.wales.nhs.uk
- Hywel Dda University Health BoardHywel Dda University Health Board provides healthcare services to a total population of around 372,320 throughout Carmarthenshire, Ceredigion and Pembrokeshire. Corporate Offices, Ystwyth Building, Hafan Derwen, St Davids Park, Jobswell Road, Carmarthen, SA31 3BB01267 235151 https://www.hywelddalhb.wales.nhs.uk
- Aneurin Bevan University Health BoardAneurin Bevan University Health Board covers the areas of Blaenau Gwent, Caerphilly, Monmouthshire, Newport, Torfaen and South Powys. It serves an estimated population of over 639,000, approximately 21% of the total Welsh population.St Cadoc's Hospital, Lodge Road, Caerleon, Newport, Wales, NP18 3XQ01873 email@example.com://www.aneurinbevanhb.wales.nhs.uk/
- Betsi Cadwaladr University Health BoardThe Betsi Cadwaladr University Health Board serves a population of 678,000 people across the six counties of North Wales: Anglesey, Gwynedd, Conwy, Denbighshire, Flintshire and Wrexham.Ysbyty Gwynedd, Penrhosgarnedd, Bangor, Gwynedd, LL57 2PW01248 384 384https://www.bcu.wales.nhs.uk
- Powys Teaching Health BoardPowys Teaching Health Board is responsible for meeting the health and wellbeing needs of around 133,000 people living in Powys, mid Wales. Mansion House, Bronllys, Brecon, Powys, LD3 0LS01874 711661https://www.powysthb.wales.nhs.uk/
- Abertawe Bro Morgannwg University Health BoardAbertawe Bro Morgannwg University Health Board sereves a population of approximately 500,000 people in the areas of Swansea, Neath Port Talbot and Bridgend. 1 Talbot Gateway, Baglan Energy Park, Baglan, Port Talbot, SA12 7BR01639 683344https://www.abm.wales.nhs.uk
- Cardiff and Vale University Health BoardCardiff and Vale University Health Board provides health services to a population of around 472,400 people living in Cardiff and the Vale of Glamorgan. Cardigan House, University Hospital of Wales, Heath Park, Cardiff, CF14 4XW029 2074 7747https://www.cardiffandvaleuhb.wales.nhs.uk
- Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 firstname.lastname@example.org://www.dementiauk.org
- Carers TrustCarers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.32-36 Loman Street, London, SE1 0EH0844 800 email@example.com://www.carers.org
- Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 firstname.lastname@example.org://www.alzheimers.org.uk/
- Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers. The Music Base, King's Place, 90 York Way, London, N1 9AG020 7520 email@example.com://www.arts4dementia.org.uk/
- Carers UKCarers UK is a national membership charity for carers, that is both a support network and a movement for change.20 Great Dover Street, London, SE1 4LX0808 808 firstname.lastname@example.org://www.carersuk.org/
- Carers DirectCarers Direct offer a helpline for carers that need help with their caring role and want to talk to someone about what options are available to them. PO Box 27079, Glasgow, G3 9EJ0300 123 1053https://www.nhs.uk/CarersDirect/carerslives/updates/Pages/CarersDirecthelpline.aspx
- Employers for CarersEmployers for Carers provides practical, ‘hands-on’, help to employers to support carers in their workforce.20 Great Dover Street, London, SE1 4LX020 7378 email@example.com://www.employersforcarers.org/
- Short Breaks NetworkThe Short Breaks Network is the national co-ordinating body for the short break sector in the UK, providing short breaks for disabled children, young people and their families. Melbourne House, 36 Chamberlain Street, Wells, Somerset, BA5 2PJ01749 689 firstname.lastname@example.org://www.shortbreaksnetwork.org.uk/
- “Zest for Life” – Young Onset Dementia ServiceWe are a supportive group for younger individuals. Suitable for those living with young onset dementia or cognitive impairment. We welcome individuals and carers across Gwent.
Weekly Friday drop-in groupWiddershins Centre, East Ave, Griffithstown, Pontypool NP4 5AB01495 769264